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@potter 

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potter

Bladder problems

My bladder has finally decided not to fully empty so I have been fighting of bladder infections for a couple of months. I started seeing a urologist a couple of weeks ago, I went through all of the tests and failed. He has me on a low dose antibiotic and is trying some different medications. H...

Ocrevus stopped due to COVID19

I was supposed to have my first Ocrevus infusion today but it has been deferred in light of the coronavirus outbreak and I will be treated with Brabio for the time being instead. I had emailed some concerns to my hospital (The National Hospital for Neurology and Neurosurgery in London) as I was worr...

@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

@lillibet23 

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lillibet23

Covid and work

Hi all I have rrms and I take fingolimod for this I work as a nurse on the front line , my ms nurse advised that I self isolate for 12 weeks at the beginning of coronovirus but I stayed at work until 2 weeks ago and my manager signed me off on medical suspension due to risk as icu became all covid...

@BULLMAN 

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BULLMAN

Flirting 2020

If Coronavirus didn’t take you out, can I ?

Coronvairus /Ocrelizumab vaccine trial

Hi all, - If you take ocrelizumab (Ocrevus) , as I do, and want to participate in a vaccine trial then have a read of this post on the Barts MS blog and get in touch with them via the blog. - https://multiple-sclerosis-research.org/2020/06/mscovid19-covax-or-coronavirus-ocrelizumab-vaccination-study...

@TonyMS47 

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TonyMS47

Ocrevus

I am switching from Tecfidera to Ocrevus. I'd been waiting since the beginning of the year and then the coronavirus came into play. So now I am still waiting. It seems that I had new lesions on my last MRI scan even though I'd been on Tecfidera for the last five years. I just hope this thing starts ...

@Will_Berard 

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Will_Berard

Coronavirus: Trauma and Defenses

A useful model in those trying times: https://www.carolynspring.com/wp-content/uploads/2020/06/coronavirus_trauma_dynamics.pdf (protip: doesn't just applies to the traumas of the coronavirus)

The coronavirus and MS – updated

From the International MS Federation. June 2020 - https://www.msif.org/news/2020/02/10/the-coronavirus-and-ms-what-you-need-to-know/ - Just the latest, that is all.

@Dawson.McWatch 

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Dawson.McWatch

Hand washing is a must

Is anyone worried about the whole coronavirus I’m starting to worry I already have a weak Immune system due to my MS treatment... would that make me variable to the virus because of that or am I just overthinking this?!? Get back to me in the comments what’s your opinion