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@BULLMAN 

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BULLMAN

Flirting 2020

If Coronavirus didn’t take you out, can I ?

Coronvairus /Ocrelizumab vaccine trial

Hi all, - If you take ocrelizumab (Ocrevus) , as I do, and want to participate in a vaccine trial then have a read of this post on the Barts MS blog and get in touch with them via the blog. - https://multiple-sclerosis-research.org/2020/06/mscovid19-covax-or-coronavirus-ocrelizumab-vaccination-study...

@TonyMS47 

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TonyMS47

Ocrevus

I am switching from Tecfidera to Ocrevus. I'd been waiting since the beginning of the year and then the coronavirus came into play. So now I am still waiting. It seems that I had new lesions on my last MRI scan even though I'd been on Tecfidera for the last five years. I just hope this thing starts ...

@Will_Berard 

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Will_Berard

Coronavirus: Trauma and Defenses

A useful model in those trying times: https://www.carolynspring.com/wp-content/uploads/2020/06/coronavirus_trauma_dynamics.pdf (protip: doesn't just applies to the traumas of the coronavirus)

The coronavirus and MS – updated

From the International MS Federation. June 2020 - https://www.msif.org/news/2020/02/10/the-coronavirus-and-ms-what-you-need-to-know/ - Just the latest, that is all.

@Will_Berard 

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Will_Berard

Has anyone had COVID-19 (yet?)

I'd like to hear first or at most second hand an account of what it's like for a PwMS to go through COVID. I'm surprised and a bit concerned that I've not seen one here yet. Either we're very good at shielding, or we tend to die of COVID, or both. Or it's just a quirk of stats, and the rate of inf...

@laurainiho 

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laurainiho

Re starting treatment

Hello, So I got diagnosed with rrms last August, started on ocrevus in October. I was supposed to have the next infusion in March but it was cancelled because of coronavirus. My ms nurse rang me yesterday to say my treatment is happening next month- great! But due to covid19 I will have to isolate...

@mser79 

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mser79

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...