I've recently been talking to someone at work who's newly diagnosed. He remarked about the support he's getting from other MSers
Going to test an @ and # by saying @Sclerobro#ocrelizumab
Hello everybody,
I have had Progressive for 26 years since I was 25. I recently was educated on Ocrelizumab and got excited ! I do hope that I can begin on it. Please let me know how you people who are on that treatment are finding it. Thank-you, Celia
I've recently been started on Ocrelizumab and have noticed over the past week that my hair smells funny. At first I thought it was due to the heat and my head sweating but even straight after washing it I can smell it. I've been describing it like a sweaty smell or the smell of a wet dog. A couple o...
Hi, just thought I'd share my experience of my 1st half doze from earlier today in order that someone else may get some use from it. 1st half doze completed today in Glasgow. So far, so good. I got out about 330pm. I was given lots of advice by lots of people. Seems to have worked well. Few sweets, ...
Hi all. So, I know, a couple of weeks ago, I had an MDT DMT meeting, discussing my medication and recent relapses and new lesions. Still not received a letter from them, but I know that it can take a couple of weeks.
However, a nurse from my MS team called me today, telling me that they'll be booki...
Hi guys. I've got epilepsy because of a lesion (yay), and talking to my gp, hes said that when I do start trying for kids, to discuss with him first because of my lamotrigine. So, obviously, I've looked on the bnf (a very good resource for looking at meds, and its what health professionals use) and ...
Hi, after a recent spurt of relapses, my consultant and his team are putting me forward for a change in my medication. I am normally on the 3 times weekly copaxone, and they are looking at ocrelizumab. I've looked at the BNF, and medicines.org.uk, at the ocrelizumab, and wanted peoples take on it. L...
My neurologist has suggested Ocrelizumab or Mavenclad.
He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period.
Confused? Can I ask members for their experience with either treatments 🤔
Morning,
I am 50, been diagnosed 26y and on 4th DMT. I have never ever had any kind of hayfever type thing.
Lately, my eyes have been itching like buggery and though not too red and puffy I could happily gouge them out at times.
I have had itchy patches of skin and that is to be expected. I wond...