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@StevenH67 

Last reply

StevenH67

1st Ocrelizumab / Ocrevus experience

Hi, just thought I'd share my experience of my 1st half doze from earlier today in order that someone else may get some use from it. 1st half doze completed today in Glasgow. So far, so good. I got out about 330pm. I was given lots of advice by lots of people. Seems to have worked well. Few sweets, ...
12

@Celia_Foley 

Last reply

Celia_Foley

Ocrelizumab

Hello everybody, I have had Progressive for 26 years since I was 25. I recently was educated on Ocrelizumab and got excited ! I do hope that I can begin on it. Please let me know how you people who are on that treatment are finding it. Thank-you, Celia
  • Music & Audio
13

@daveserjeant 

Last reply

daveserjeant

Welcome to new MSers

I've recently been talking to someone at work who's newly diagnosed. He remarked about the support he's getting from other MSers Going to test an @ and # by saying @Sclerobro #ocrelizumab
Nottingham, United Kingdom
1

@Paula1184 

Last reply

Paula1184

Sense of smell & Ocrelizumab

I've recently been started on Ocrelizumab and have noticed over the past week that my hair smells funny. At first I thought it was due to the heat and my head sweating but even straight after washing it I can smell it. I've been describing it like a sweaty smell or the smell of a wet dog. A couple o...
1

@charlotte_wright 

charlotte_wright

Would I be changing meds?

Hi all. So, I know, a couple of weeks ago, I had an MDT DMT meeting, discussing my medication and recent relapses and new lesions. Still not received a letter from them, but I know that it can take a couple of weeks. However, a nurse from my MS team called me today, telling me that they'll be booki...
  • Drugs & Medications
  • Health Conditions
  • Mental Health

@DominicS 

Last reply

DominicS

New allergies on Ocrelizumab?

Morning, I am 50, been diagnosed 26y and on 4th DMT. I have never ever had any kind of hayfever type thing. Lately, my eyes have been itching like buggery and though not too red and puffy I could happily gouge them out at times. I have had itchy patches of skin and that is to be expected. I wond...
  • Allergies
8

@charlotte_wright 

Last reply

charlotte_wright

Ladies on lamotrigine

Hi guys. I've got epilepsy because of a lesion (yay), and talking to my gp, hes said that when I do start trying for kids, to discuss with him first because of my lamotrigine. So, obviously, I've looked on the bnf (a very good resource for looking at meds, and its what health professionals use) and ...
4

@cwright17 

Last reply

cwright17

People's experiences with medication

Hi, after a recent spurt of relapses, my consultant and his team are putting me forward for a change in my medication. I am normally on the 3 times weekly copaxone, and they are looking at ocrelizumab. I've looked at the BNF, and medicines.org.uk, at the ocrelizumab, and wanted peoples take on it. L...
3

@DominicS 

DominicS

Coronvairus /Ocrelizumab vaccine trial

Hi all, - If you take ocrelizumab (Ocrevus) , as I do, and want to participate in a vaccine trial then have a read of this post on the Barts MS blog and get in touch with them via the blog. - https://multiple-sclerosis-research.org/2020/06/mscovid19-covax-or-coronavirus-ocrelizumab-vaccination-study...

@Kalwinder_Sekhon-Aujla 

Last reply

Kalwinder_Sekhon-Aujla

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔
10
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