Sort 94 results by

Page 3

Newbie

Hi I'm new to this group, I was diagnosed June 2020. My first symptoms started 2hrs ago as Carmel tunnel syndrone. My right arm would go numb for a few minutes and I would shake it off. January 2020 I went to ER with symptoms of right sides numbness and when I bend my forward I feel an electric ting...

@Nadcarrots 

Last reply

Nadcarrots

The Beginning

Hi! Recently just officially joined the MS gang and thought I would say hello. I have been looking around on the site and it looks really great and it's pretty awesome that something like this exists and is so accessible for people that have MS. I went from thinking I had Transverse Myelitis w...

Newly diagnosed - advice please!

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

Newly diagnosed - UK MSers advice please

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

Newly diagnosed - UK MSers advice please

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

@hayleyc85 

Last reply

hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

@Carole-Ann_Scott 

Last reply

Carole-Ann_Scott

First treatment due

Hi all I am due to start treatment for the first time & have been offered either Brabio or Abonex as first line. Any experiences of either? Side effects etc? I’ve read up a lot & spoken with my ms nurses & im leaning towards Avonex Many thanks x

@Lucy_Cook 

Last reply

Lucy_Cook

Treatment options

Hi all New to the site. Been given 3 options for treatment and I am siding with Rebif as we are thinking of starting a family soon. What’s people’s thoughts on it? So much information to take it. I’m feeling very confused and overwhelmed. Got diagnosed about 3 weeks ago. Thanks in advance Lucy

@Alex_Bolland 

Last reply

Alex_Bolland

Never given a chance.

I have primary progressive MS, and have been trying for a long time to get access to ocreveus, they tell me you have to have recent activity in your brain or you will not get it, i feel my condition has worsened and surely this treatment is worth trying whether you have any brain activity or not, i ...

@itsallinmyhead 

Last reply

itsallinmyhead

Moving hospitals

I am contemplating a move to Margate from London. Does anyone have advice on neurologist/hospital in East Kent please? Somewhere that has an outpatient program? I’m very happy with my Neurologist in London so moving hospitals makes me slightly nervous. Thank you 😊