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PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

@Magnum1 

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Magnum1

Tough subject :(

So my wife of 31 years was diagnosed with RRMS in 1995. In that time she has tried many many medications. Nothing has stopped or even slowed her progression into secondary progressive MS. We travelled to Poland 2010 for CCSVI treatment. Still her MS progressed. She has been using a wheelchair now fo...

@nnahdiliec 

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nnahdiliec

Travelling with Tysabri

Hello! I was just wondering if there’s anyone on here that’s started the treatment Tysabri? I’m currently on Copaxone and the neurologist wants me to move over to Tysabri soon. The reason I’m asking is because I’d planned on going travelling next year and am really hoping this new treatment isn’t go...

@Ljburns 

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Ljburns

Hi!

Just joined and thought I’d say hi 👋 I was diagnosed with ms in April 2008 , after I had my eldest son. My relapse effected my eyes and my face and mouth where numb, I was given a course of intravenous steroids and that seemed to make a difference, but within 4 weeks I had another relapse that al...

@Shannon_OHara 

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Shannon_OHara

Next drug is cladribine /mavenclad

Hey guys, I've been diagnosed with Ms since I was 13 and had lots of scarring before then, had nearly 10 years of treatment. However, my Ms keeps becoming active. The next and only drug they are suggesting is cladribine /mavenclad. So taking it for the short amount of time over two years. I'd lik...

@ettelrahs 

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ettelrahs

Copaxone side effect or not?

So I had a second relapse this year, this year has been far too much D: so I started my treatment on the 17th August, which is grand, but I have been extremely tired, to the point where I cannot function at all. I have recently finished folic acid, which I was talking for two months, but then starte...

@Celia_Foley 

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Celia_Foley

Ocrelizumab

Hello everybody, I have had Progressive for 26 years since I was 25. I recently was educated on Ocrelizumab and got excited ! I do hope that I can begin on it. Please let me know how you people who are on that treatment are finding it. Thank-you, Celia

@GiuliaB 

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GiuliaB

Is Brighton hospital any good?

Hello there, I've moved from London to Brighton in November, and at the time I decided to keep my neurologist in London, but now going back and fourth for MRIs etc isn't ideal. Does anyone have any experience of ms doctors/nurses in Brighton? Any recommendation? Cheers, g

@Carole-Ann_Scott 

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Carole-Ann_Scott

First treatment due

Hi all I am due to start treatment for the first time & have been offered either Brabio or Abonex as first line. Any experiences of either? Side effects etc? I’ve read up a lot & spoken with my ms nurses & im leaning towards Avonex Many thanks x

@LM24 

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LM24

Ocrevus

Started Ocrevus in October last year, my first full dose was due in April but obviously got cancelled due to the Corona virus. It’s been rescheduled for 23rd June (day before my birthday) . I’m just really hoping I’m not told to shield afterwards. Has anyone who has received their treatment lately ...