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@Celia_Foley 

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Celia_Foley

Ocrelizumab

Hello everybody, I have had Progressive for 26 years since I was 25. I recently was educated on Ocrelizumab and got excited ! I do hope that I can begin on it. Please let me know how you people who are on that treatment are finding it. Thank-you, Celia

@GiuliaB 

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GiuliaB

Is Brighton hospital any good?

Hello there, I've moved from London to Brighton in November, and at the time I decided to keep my neurologist in London, but now going back and fourth for MRIs etc isn't ideal. Does anyone have any experience of ms doctors/nurses in Brighton? Any recommendation? Cheers, g

@Carole-Ann_Scott 

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Carole-Ann_Scott

First treatment due

Hi all I am due to start treatment for the first time & have been offered either Brabio or Abonex as first line. Any experiences of either? Side effects etc? I’ve read up a lot & spoken with my ms nurses & im leaning towards Avonex Many thanks x

@LM24 

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LM24

Ocrevus

Started Ocrevus in October last year, my first full dose was due in April but obviously got cancelled due to the Corona virus. It’s been rescheduled for 23rd June (day before my birthday) . I’m just really hoping I’m not told to shield afterwards. Has anyone who has received their treatment lately ...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

@Carole-Ann_Scott 

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Carole-Ann_Scott

New symptoms not a relapse?

Hi again So I’ve just met with my neuro - was told this was to start treatment however it was not the case! He explained they the new symptoms of neuropathic leg pain with tingling/numbness in March this year he does not think is a relapse at all but is being caused due to an old lesion on my spinal...

What diet is best for ms

I'm recently diagnosed with rrms, I'm not on any treatment yet. Just wondering what diet is best to follow?

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

Newbie

Hi I'm new to this group, I was diagnosed June 2020. My first symptoms started 2hrs ago as Carmel tunnel syndrone. My right arm would go numb for a few minutes and I would shake it off. January 2020 I went to ER with symptoms of right sides numbness and when I bend my forward I feel an electric ting...