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My name is karen. I was born in England. I will be 43, this year. I had three older siblings. All of them were born three years apart... Five years later I was born. Back in 2002-03, my second oldest sister started having symptoms. It took along time for her diagnosis. By 2020, and my sister can do...

Been waiting 2 years to start on Ocreus now, had blood test after blood test its like the doc always finds some thing to stop me starting on it. I've not heard from the ms team since the being of March and that was a letter about my last blood test. feel like im banging my head on a wall.

Been waiting 2 years to start on Ocreus now, had blood test after blood test its like the doc always finds some thing to stop me starting on it. I've not heard from the ms team since the being of March and that was a letter about my last blood test. feel like im banging my head on a wall.

Hi, I'm Mammy to two wonderful little men, the youngest being 5.5 months. I was due to go back on Gilenya sooner but as I'm sure is the case for so many, restart was delayed because of Covid. I'm due to go back on in over 2 weeks but can't get my little one to take a bottle. I've tried different ...

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...

Good morning all, My name is Laura and I’m 30 years old. This morning I’m sitting waiting to take my first Tecfidera tablet which was delivered yesterday. I genuinely thought I just had damaged nerves in my back from pushing myself at an exercise class, falling over as my leg stopped working and no...

Social distancing is vital to stop covid-19 but it seems that no thought was given to people with reduced or limited mobility. Entrances closer to parking have been closed to limit access so I had to go to the only entrance at the other side of the building. No air cons to not spread the virus are n...

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...

despite trawling different sites like disabledlinvingfoundation, i can't find QUITE what I need. My wrists ACHE while using laptop. I'm trying z slouchmat (brought as mobility roadshow,) which is good on left hand (am a leftie) and a beanie bag to rest the right wrist. kind of works BUT I need a sma...

Hi, I was wondering if anyone has had trigeminal neuralgia present as teeth pain! I have had sinuses the made my teeth hurt before but not this pulsating, shocking kind of pain along the upper row of teeth on left side. I thought tn was more like head/face pain? At first I thought it was sensitiv...