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So I met up with a friend yesterday for the first time since dx and she wanted to know what my MS was like. As it’s mostly silent right now I said that apart from very numb toes and sometimes feeling like I’m walking on gravel it was OK. Her response was to exclaim that she had numb toes too. She th...

I have been feeling so crappy. I am diagnosed with RRMS since 1998 at age of 28. No real problems until 2017! When I had a flare up main symptom dizzy and fatigue - severe. I recovered nearly complete, went on my first dmt copaxone. Annual mris were fine, a couple of small lesions even disappeare...

Sounds promising. Mechanisms Identified to Restore Myelin Sheaths After Injury or in Multiple Sclerosis https://neurosciencenews.com/myelin-restoration-16896/

Hi. My name is Cara & I have had MS for 15 years. I started a company, The SwitchVR, 3 years ago. Our purpose is to develop holistic therapeutics (i.e. meditation, mindfulness, Qigong) using technology so that we can offer complementary practices for MS patients, like myself. Our first product i...

I know there is lots here about optic neuritis, but I wanted to ask if anyone has had their vision recovered but been left with discomfort ever since. I had ON a year ago and lost partial vision in the eye but it returned within 2 months. However now a year on I Continue to get intermittent but dail...

I am in the process of applying for PIP and have completed the online mock PIP tests on the Benefits And Work website. All the questions seem to be geared towards assessing mental illness and physical disability though. Non of them seem to assess fatigue, which is my main symptom (especially on bad ...

Hey Peeps. Spoke to the consultant yesterday, my yearly follow-up which went ok apart from mentioning about armpit, arm and neck and shoulder pain. I was referred to the breast clinic in March which they checked me over and just said lumps were normal and having no history in the family was a good...

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Hi All, I am new to this site and wanted to introduce myself. I was unofficially diagnosed with MS whilst living in the US but due to limited understanding and MRI facilities in the UK, not officially diagnosed until 2008. Currently medically retired and enjoying life. I have spent the lockdown peri...

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...