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Newly diagnosed - UK MSers advice please

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

@angieH 

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angieH

New lesion

Just received result of annual MRI of brain and CSP. Quick recap is diagnosed w MS 1998. No DMT or identifiable symptoms until 2017, been on copaxone for 3 years. Most recent MRI says new lesion r fr lobe, and a Highlighting peri ventricular lesion which is also new. I’m feeling a bit alarmed! I ...

@Ellarosepetal 

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Ellarosepetal

Hi new

Hi im new to all this, i got diagnosed with MS last year and have just tried my best to carry on. I have had many of the symptoms for years and a rather big relapse but didn't seem understood back then lots of different tests. In the end just carried on dealing with it all, then i got optic neuritis...

@beky 

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beky

Advice/slight rant!

Hi all, hope everyone is doing ok Slightly confusing situation here: i got diagnosed with RRMS in 2018. I had a brain and neck/spine MRI and my brain looked normal but i had 3 lesions on my C spine which accounted for my symptoms. Fast forward to a few a weeks ago and my neuro sent me for another MR...

@angieH 

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angieH

Eye symptoms

So basically I know it’s going to be a bad day when I wake up with what I call heavy eyes. Has anyone had this symptom with MS? My eyelids feel weighted and so I have to struggle to keep them open. This will last all day. I do some eye movement exercises like moving my eyeballs in all directions,...

@Sofia_Phillips 

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Sofia_Phillips

Back in hospital

At this point I have to just laugh. I was in hospital last week, was diagnosed with MS. Discharged last Friday, put on steroids while in hospital, symptoms cleared up by Tuesday and I woke up this morning with a very, heavy arm with horrible cramps and pins and needles. Tried to contact enable but n...

@David_Elliott 

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David_Elliott

Do people really understand the symptoms

Hi folks. I was diagnosed with MS 2018. I've recently retired on health grounds and have just been granted PIP which is a great help. I'm very reluctant to visit anywhere where I dont know where the nearest loo is. Nightmare in the current climate !!! (covid19) Mobility is a problem re walking and b...

@Dalex 

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Dalex

please HELP!

Hi my name is Dominique. I went into the hospital last week because I had some type of stiffness, weakness on my left side. I instantly thought it was side effects to my medication, but long behold, after a MRI, they found lesions in my brain and spinal cord. Being diagnosed with RRMS and being a ...

@Sofia_Phillips 

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Sofia_Phillips

Newbie here!

Hi, I'm Sofia and I was literally diagnosed last week after suffering very mild symptoms here and there since January 2019 which were overlooked, belittled and misdiagnosed. Unfortunately I ended up going into a massive episode (I still don't know lingo) and i woke up one morning not being able to w...

@Isa_Elfers 

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Isa_Elfers

Hair falling out

Has anyone else dealt with hair falling out or hair loss? I've been dealing with MS symptoms for a little over a year and have noticed that my hair falls out much more than it used to. If I run my hand through it I might come away with five or six hairs. I've noticed I tend to lose eyelashes and bro...