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MS patient led study on Qigong for MS

Hi. My name is Cara & I have had MS for 15 years. I started a company, The SwitchVR, 3 years ago. Our purpose is to develop holistic therapeutics (i.e. meditation, mindfulness, Qigong) using technology so that we can offer complementary practices for MS patients, like myself. Our first product i...

@JoshD 

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JoshD

Advice on getting PIP for fatigue

I am in the process of applying for PIP and have completed the online mock PIP tests on the Benefits And Work website. All the questions seem to be geared towards assessing mental illness and physical disability though. Non of them seem to assess fatigue, which is my main symptom (especially on bad ...

@cwe33 

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cwe33

Newly Diagnosed.. I think

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...

@MattW 

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MattW

Viagra & new activity (ms, not bedroom)

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@Aaron_Holden 

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Aaron_Holden

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...

Thought please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@Jill0827 

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Jill0827

High humidity cooler temps

Some of my worst symptoms come during high humidity- regardless if temps are hotter or cooler. It’s a “heavy” feeling in my head that is difficult to describe (not a headache) but leads to nausea, dizziness and overall misery. I see my neuro on Monday so will ask her but I can’t seem to find ways to...

@Karen_Sue_Thacker 

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Karen_Sue_Thacker

Early signs and symptoms of MS

Can someone please elaborate what are some of the early signs and symptoms of the disease? How do I approach the subject with my physician?

@Carole-Ann_Scott 

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Carole-Ann_Scott

New symptoms not a relapse?

Hi again So I’ve just met with my neuro - was told this was to start treatment however it was not the case! He explained they the new symptoms of neuropathic leg pain with tingling/numbness in March this year he does not think is a relapse at all but is being caused due to an old lesion on my spinal...

@Bobbij 

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Bobbij

Benign MS

I was just diagnosed with benign MS not quite sure about it as of yet, all I know is my symptoms with Tingling in the scalp, right arm, pain in those areas also plus right leg, are very real, but I guess will know more once I get to see the MS specialist