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eyesight

I am one of those people who has all MS symptoms, but especially loss of eyesight. Anyhow I got a jpb. mostly home work, translation, etc. I told them I have MS but did not tell them I am registered blind. I have done this job for about 4 months. In face to face situations I can fake it, and mostly...

What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

@MattW 

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MattW

Aaaaarrrrgh

I hate this disease (and I'm trying hard not to fill this with expletives). I have been with my partner 4 years after 16 years in a pretty miserable relationship. We are very much in love and had (and that really hurts me to say) a fantastic sex life. However, my interest in sex had been declining ...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@Lilypalooza 

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Lilypalooza

Having a wobble

I've had symptoms for the past 8 years but was only officially diagnosed in February. I thought I was handling it ok - wasn't looking to change anything I'd been doing just maybe not push myself as hard - then Covid-19 hit. Again was ok at the start but now my fatigue is hitting me earlier and earli...

@Adelleholly 

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Adelleholly

Medication.

I’ve recently just been diagnosed and have been given the option of which medication I could try out the most promising one is Tecfidera but has some unpleasant side effects and I was just wondering if you are on this medication, how long did the symptoms last or do you still have them?

@DominicS 

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DominicS

Remylenation: The Holy Grail

Finding a way to get the human nervous system to grow back the myelin, the nerve covering that MS attacks and causes the symptoms, be they minor or major, we all experience is the next huge hurdle. - I link to a total science paper here: https://www.cell.com/cell-reports/pdf/S2211-1247(20)30611-2.pd...

@SammyB 

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SammyB

Symptoms

I need some advice on disclosing my symptoms #symptoms
London, United Kingdom

Belong | A short film about finding support from others

Belong is a short film that sees Dave, who has recently been diagnosed with MS, meet with others affected by the condition for the first time. They discuss MS symptoms, how MS has affected their relationships and how MS can also have a positive effect on a person's life. What good out of bad have yo...