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A short story

What is it like to have Multiple Sclerosis? MS is a strange disease. It attacks you, from every angle, but some you cannot imagine. If you walked around in a space suit that gave you general MS symptoms you would miss a lot. Basically if you have MS you really should be living on a space station. T...

@ncm22 

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ncm22

How long have you had ms ??

Hi everyone. I have had relapsing remitting ms since 2010, symptoms since 2007. Main symptom numbness from waist down on movement. I have had numbness for 10 plus years. I also get tremors from waist down, usually controlled by medication. I get other sensory issues. I didn't start medication till...

Experiences of Ocrevus

Before I start, I want to say, I know it's early days... I was diagnosed in Aug 2019 with RRMS after 18months with a CIS diagnosis. My initial scan showed lesions but they couldn't tell how old or if active. 6 months later a second scan was stable. 6 months later my third scan showed new lesions wh...

@Sophietest 

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Sophietest

Family Matters

https://www.instagram.com/p/CArz6I8gwTj/ Family Matters is a new short film series by Shift.ms that aims to capture the value of an MSer’s close support network and the impacts that diagnosis can have on relationships. When Daniel was 15 years-old he woke up one morning unable to see or walk. He wa...

@mj2000uk 

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mj2000uk

New symptom - internal tremor.

Over the last couple of months I seem to have developed a new symptom. I now feel like the inside of my body is shaking but the outside of my body is not! I spoke to my MS nurse and they did not seem overly concerned with this. however, I notice it more and more and it is beginning to drive me slig...

@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

@Katherineee 

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Katherineee

COVID Concerns

Hello MSers, I haven't posted in a while but I wanted to talk about COVID19. Is anyone else worried about not receiving their treatment? I'm on ocrevus and doctors have stopped my treatment as it can suppress my immune system, however, they have also confirmed that the ocrevus inside my body will ...

@SJ1990 

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SJ1990

Coming off gilenya?...

Has anyone come off gilenya?? I've been on it for 4 years and they want to take me off it now and switch me back to tysabri due to reactions from it. I really want to have a break from medications and see if I can treat it naturally but have been told that symptoms/relapses can come back with a veng...

@Browneyedlady 

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Browneyedlady

I need answers

<p>I was diagnosed with MS in 2009. </p> <p>My complaint is my neurologist. She says I have no need for medication at this time and never calls or has me schedule an appointment. She doesn’t listen to my symptoms. I asked many questions and she didn’t answer any.</p> <p>What can I do?...</p>

@sharanjitkaur 

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sharanjitkaur

Treatment for MS

Hi guys, i am right now taking treatment for MS in India (Ayush Prana) in a specialized center for Multiple Sclerosis. If I can talk from my own experience I personally must say that it is really very effective. Not only for me but other patients around me are improving also. We all suffer from dif...