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@mj2000uk 

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mj2000uk

New symptom - internal tremor.

Over the last couple of months I seem to have developed a new symptom. I now feel like the inside of my body is shaking but the outside of my body is not! I spoke to my MS nurse and they did not seem overly concerned with this. however, I notice it more and more and it is beginning to drive me slig...

@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

@Katherineee 

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Katherineee

COVID Concerns

Hello MSers, I haven't posted in a while but I wanted to talk about COVID19. Is anyone else worried about not receiving their treatment? I'm on ocrevus and doctors have stopped my treatment as it can suppress my immune system, however, they have also confirmed that the ocrevus inside my body will ...

@SJ1990 

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SJ1990

Coming off gilenya?...

Has anyone come off gilenya?? I've been on it for 4 years and they want to take me off it now and switch me back to tysabri due to reactions from it. I really want to have a break from medications and see if I can treat it naturally but have been told that symptoms/relapses can come back with a veng...

@Browneyedlady 

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Browneyedlady

I need answers

<p>I was diagnosed with MS in 2009. </p> <p>My complaint is my neurologist. She says I have no need for medication at this time and never calls or has me schedule an appointment. She doesn’t listen to my symptoms. I asked many questions and she didn’t answer any.</p> <p>What can I do?...</p>

@sharanjitkaur 

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sharanjitkaur

Treatment for MS

Hi guys, i am right now taking treatment for MS in India (Ayush Prana) in a specialized center for Multiple Sclerosis. If I can talk from my own experience I personally must say that it is really very effective. Not only for me but other patients around me are improving also. We all suffer from dif...

eyesight

I am one of those people who has all MS symptoms, but especially loss of eyesight. Anyhow I got a jpb. mostly home work, translation, etc. I told them I have MS but did not tell them I am registered blind. I have done this job for about 4 months. In face to face situations I can fake it, and mostly...

What&#039;s your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

@MattW 

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MattW

Aaaaarrrrgh

I hate this disease (and I'm trying hard not to fill this with expletives). I have been with my partner 4 years after 16 years in a pretty miserable relationship. We are very much in love and had (and that really hurts me to say) a fantastic sex life. However, my interest in sex had been declining ...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...