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@Bigpeg88 

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Bigpeg88

Tysabri changes...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...

@potter 

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potter

Bladder problems

My bladder has finally decided not to fully empty so I have been fighting of bladder infections for a couple of months. I started seeing a urologist a couple of weeks ago, I went through all of the tests and failed. He has me on a low dose antibiotic and is trying some different medications. H...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

Have you been a PPI rep on a project?

Hi all I'm hoping you can help. I am speaking about 'Patient and Public Involvement' (PPI) at the MS Frontiers conference in Bath, UK on the 5th July. I'm keen to speak with MSers who have been a PPI representative on research projects... is this you? Are you happy to share your experiences? If s...

@Jeslyn_Mauriello 

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Jeslyn_Mauriello

Tecfidera and child-bearing?

There’s quite a bit of literature online for this, and I will be talking to me doctor of course. But as I am on Tecfidera, I was hoping one of you on my team would have a word for me in regard to taking the medication while A) trying to conceive B) while breastfeeding. I know you don’t take the me...

@melissa.g 

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melissa.g

Mavenclad

<p style="margin: 0cm; margin-bottom: .0001pt; line-height: 16.8pt; vertical-align: baseline;"><span style="font-size: 13.5pt; font-family: 'Times New Roman',serif; color: #333333;">Hi all!</span></p> <p style="margin: 0cm; margin-bottom: .0001pt; line-height: 16.8pt; vertical-align: baseline;"></p>

@basgds 

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basgds

Thanks for accepting my request to join.

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...

@melissa.g 

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melissa.g

Mixed emotions at MRI results

Hi everyone. Haven't posted much lately but I felt inclined to share today. So, I hadn't had a brain MRI in 2.5 years, and they finally set me for one last month. I don't see the dr until February so I asked my chiropractor (who also does neuro rehab etc) to get the results for me. We went over th...

@Tash41 

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Tash41

Going abroad

Hi, just wondered since being diagnosed how people's experiences of going abroad have changed. Does insurance go sky high for example? Love going on holiday and hoping I can still go every now and then. Thanks