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Hey all 🙂 im hoping this is common with others suffering MS.... people just dont seem to understand anything about it or what you might be going through! Friends... family and work colleagues see you looking normal and presume everything is fine.... I never want to come across dramatic but sometime...

Hi, just wondered since being diagnosed how people's experiences of going abroad have changed. Does insurance go sky high for example? Love going on holiday and hoping I can still go every now and then. Thanks

Hello there. I have just joined the group as I have MS. I was diagnosed in 1994 and it's been a rollercoaster journey since. I'm feeling a bit miserable at the moment as my memory has gone on a go slow. I thought that things would improve when the heat reduced but I'm so forgetful. I went to an opt...

2001 Optic neuritis. Go blind suddenly - and fortunately temporarily - in one eye. Ophthalmologist sends me to neurologist. The neurologist tells me in a jovial tone to say that I have had optic neuropathy to insurers - if I say optic neuritis they’d put me down as having MS. MRI done. No follow up...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...

Do u ever get them days where u just feel as u wanna run away , ive had loads planned to do around the house to tidy it up and sort , I get sat down and think bugger it carnt be bothered , am tired its hot to hot for me the kids are running in and out , I'm at the hospital tomorrow to see what can b...

My bladder has finally decided not to fully empty so I have been fighting of bladder infections for a couple of months. I started seeing a urologist a couple of weeks ago, I went through all of the tests and failed. He has me on a low dose antibiotic and is trying some different medications. H...

Hi all I'm hoping you can help. I am speaking about 'Patient and Public Involvement' (PPI) at the MS Frontiers conference in Bath, UK on the 5th July. I'm keen to speak with MSers who have been a PPI representative on research projects... is this you? Are you happy to share your experiences? If s...

Hi, I'm Sofia and I was literally diagnosed last week after suffering very mild symptoms here and there since January 2019 which were overlooked, belittled and misdiagnosed. Unfortunately I ended up going into a massive episode (I still don't know lingo) and i woke up one morning not being able to w...

The next Wobble is Sunday 16th August at 11am UK time. It’s on Zoom and the meeting ID is 769 769 4064. Password is Wobble1. If you are free and interested in shooting the 💩 come on in we don’t bite.