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27 nov

Gosh I’m struggling so much getting out of bed every morning, I wake up feeling hideously exhausted and go to sleep the same way. I feel I can’t function and I’m not in control of waking up because all my brain wants to do is sleep!!!! No point to this post really other than a rant and hoping for a...

Test with tag

Gosh I’m struggling so much getting out of bed every morning, I wake up feeling hideously exhausted and go to sleep the same way. I feel I can’t function and I’m not in control of waking up because all my brain wants to do is sleep!!!! No point to this post really other than a rant and hoping for a...

Hello

Hello Gosh I’m struggling so much getting out of bed every morning, I wake up feeling hideously exhausted and go to sleep the same way. I feel I can’t function and I’m not in control of waking up because all my brain wants to do is sleep!!!! No point to this post really other than a rant and hoping...

Shingles/ mystery flare

Hey everyone, thanks so much for your comments and support on my last post. Really appreciated it! ❤️‍🩹🙏 where I was having a lot of symptoms and weird sensations that had me scared. Since then it all got much worse the past few days where I just had super weak achy limbs, exhaustion and strange n...

Hello 14/03/2022

I'm feeling terrible. Really depressed. I'm hoping the sentiment analysis picks up how bad I feel.
Barcelona, Spain

PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

@chezy17 

Last reply

chezy17

Relapse or not?

Just wondering if a stiff and painful neck and shoulders is likely to be a relapse? I woke up a couple of weeks ago with a really stiff neck and it was really hard to sleep and move it which I put down to camping in the garden. I spoke to my neuro a week or so ago and he thought that my aches and p...

@MintedMinders 

Last reply

MintedMinders

New Employment.

Hello Just wanted to ask the community for any feedback / experience. Redundant 14 months now. Just secured some freelance work 2 days per week, ongoing. In my industry and for a good company. Will not pay the bills but I am hoping it will lead to a full time job and will buy me more time from my...

@Terrier58 

Last reply

Terrier58

Botox

Anyone having Botox jabs for spasticity? I’ve tried the following Baclofen, Gabapentin and Pregabalin with hideous side effects. Now Botox has been suggested for my left leg. I’m hoping to see De Ling in Cambridge. Any experience out there? Thank you people.