Looking for
something specific?

Hi all I'm hoping you can help. I am speaking about 'Patient and Public Involvement' (PPI) at the MS Frontiers conference in Bath, UK on the 5th July. I'm keen to speak with MSers who have been a PPI representative on research projects... is this you? Are you happy to share your experiences? If s...

Hello everyone, i'm new here, and i could really need advice. Does anybody have experience with rebif and pregnancy? I’m on Rebif since January 2020. Now i am 6 weeks pregnant. I talked with my neuro, and she told me that new studies (from 2020) showed that Rebif is okay during pregnancy, but i am...

Hi there have any of you had any experience with cbd oil ? Does it work for anyone ? Very curious about this ,and do you take it along side other meds or not ? I know this is not medical registered. But researching it. It looks like it’s very helpful. Any views appreciated

I want to share my experiences with everyone about my ketogenic diet. The Keto diet is very low in carbohydrates and high in healthy fats with a medium protein intake, and it is designed to put you into ketosis, which makes your body burn fat for energy, instead of glucose. The benefits can be ama...

Hello all. Here is a post which I hope communicates a positive event in spite of, and separate to, MS. First, to say that I am not at all a vain person, but have always appreciated being relatively trim and spritely due to good genes. For many decades I have maintained a constant weight, give or tak...

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

Sorry if this is against the rules guys but some help is needed!!!! My story... My name is Adam Dawar and I have Secondary Progressive MS. I was diagnosed about 7/8 years ago. Like many of you, I went to bed one night and when I woke up - life as I knew it had changed forever and my journey into M...

After nearly 3 years of searching for answers to my wife's rapid cognitive decline, multiple tests and MRIs and second opinions it is clear she has a the syndrome of Dementia. Our local neurologist as well as the team at UCLA agree that the cause is MS. Images show significant brain atrophy. I ...

I couldn't have put it any better. https://multiple-sclerosis-research.org/2020/07/the-kingdom-of-the-sick/