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Would I be changing meds?

Hi all. So, I know, a couple of weeks ago, I had an MDT DMT meeting, discussing my medication and recent relapses and new lesions. Still not received a letter from them, but I know that it can take a couple of weeks. However, a nurse from my MS team called me today, telling me that they'll be booki...

@mser79 

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mser79

3rd infusion of lemtrada?

Hi I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...

@KatieLondon 

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KatieLondon

Horrible month

Hi all have had a rough month, came off of Gilenya, started Tysabri, then had a terrible relapse couldn’t walk stand or barely move. I’ve has 10 days of intense steroids my walking drop foot are starting to get more manageable and life is finally starting to get back to normal. Hope everyone else i...

@jennymay1548 

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jennymay1548

Introduction

Hi! I’m Jenny-May,I’m 21 and I’ve recently been diagnosed with relapsing remitting MS. I’ve been advised to join because I’m quite ‘lonely’ as my therapist says 🤦🏼

@newbie 

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newbie

DMT and work

Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...

@Rachel_Hilton_1 

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Rachel_Hilton_1

Starting anew?

I’m struggling at the moment. As we went into lockdown, my partner of 11 years decided to tell me he effing hates living with me and dumped me, the same week as I had to have my 19 year old dog put to sleep. He knew from the outset of the relationship that I had ms and it is a degenerative disease...

Strong doubt

The longer it's been not having a relapse the less likely I feel like having any at all.

@Stephen_Williams 

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Stephen_Williams

Hi to my old friend!

Hi to my old friend! That is SHIFT MS! - Not you, well it could be? I guess a stranger is a friend you just haven't met just yet! I was speaking to my OT via video call at hospital during this crazy and unusual time. She suggested going on SHIFT MS and it is a website I joined several years ago and...

@Ray_Thomas 

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Ray_Thomas

Eyes

Hi Since my last relapse , a year ago in May - my eyes have been a real problem. not double vision as such.., I assume its just a mild version of my vertigo , that never went away It's worse if i have been in a room for a while then go out side ! looking around and left to right quickly is a no no...

@twiggy3 

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twiggy3

Flare up still going on

Seriously how long can a flare up of old symptoms last ? And can a flare not relapse happen regardless of any infection ? Appreciate any help with this