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@KatieLondon 

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KatieLondon

Horrible month

Hi all have had a rough month, came off of Gilenya, started Tysabri, then had a terrible relapse couldn’t walk stand or barely move. I’ve has 10 days of intense steroids my walking drop foot are starting to get more manageable and life is finally starting to get back to normal. Hope everyone else i...

@jennymay1548 

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jennymay1548

Introduction

Hi! I’m Jenny-May,I’m 21 and I’ve recently been diagnosed with relapsing remitting MS. I’ve been advised to join because I’m quite ‘lonely’ as my therapist says 🤦🏼

@newbie 

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newbie

DMT and work

Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...

@Rachel_Hilton_1 

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Rachel_Hilton_1

Starting anew?

I’m struggling at the moment. As we went into lockdown, my partner of 11 years decided to tell me he effing hates living with me and dumped me, the same week as I had to have my 19 year old dog put to sleep. He knew from the outset of the relationship that I had ms and it is a degenerative disease...

Strong doubt

The longer it's been not having a relapse the less likely I feel like having any at all.

@Stephen_Williams 

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Stephen_Williams

Hi to my old friend!

Hi to my old friend! That is SHIFT MS! - Not you, well it could be? I guess a stranger is a friend you just haven't met just yet! I was speaking to my OT via video call at hospital during this crazy and unusual time. She suggested going on SHIFT MS and it is a website I joined several years ago and...

@Ray_Thomas 

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Ray_Thomas

Eyes

Hi Since my last relapse , a year ago in May - my eyes have been a real problem. not double vision as such.., I assume its just a mild version of my vertigo , that never went away It's worse if i have been in a room for a while then go out side ! looking around and left to right quickly is a no no...

@twiggy3 

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twiggy3

Flare up still going on

Seriously how long can a flare up of old symptoms last ? And can a flare not relapse happen regardless of any infection ? Appreciate any help with this

@Ciara_Fisher 

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Ciara_Fisher

Gilenya and Pregnancy

I’m struggling with the thoughts of when I want to start trying for a baby next year. I’m in college and graduate in September and I always said I wanted to start trying once I’m finished college but now that I’m on Gilenya everything has to be planned. Ideally I don’t want to finish college off my ...

@sofyg 

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sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...