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@Bridgett_Tadel 

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Bridgett_Tadel

Steroids not helping

Ugh! Had burning stabbing nerve pain in my right foot sat, sun, mon, (of course on the weekend, can't get ahold of any doctors). Felt like my foot was on fire!! started steroid infusions Tuesday, Wed, Thurs, then 2 weeks of oral meds. And I still have the numbness with occasional pain. I was only di...

@cwe33 

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cwe33

Newly Diagnosed.. I think

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...

@PetLamb 

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PetLamb

Showering Tip

Hi guys 👋 I'm now SPMS and everything is getting decidedly more difficult. Showering in particular is a major hazard in many ways. My right side is good but my left side is affected by spasticity. I'm right handed and can't do a lot with the left due to weakness and proprioception issues. So...

Painful leg spasms

Hello y'all I'm having unrelenting muscle spasm in my legs up to my hips. I take baclofin gabapentin Tylenol and ibruprophin all day every day. I can be active for a couple of hours and then another 💊cocktail. This is all day every day. Iw want to know if this is an episodean episode or the progr...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@HelenJR 

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HelenJR

Unsolicited advisors

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

new pain

hey just went to the cafe and work to a get a coffee, and upon trying to pick it up with my right arm i was hit with almost unbearable muscle pain. this isn't one of my usual muscular gripes that we all face day to day, but rather feels like i've torn a bicep or something. super painful and now am ...

Newbie here!!

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

Me! As a cartoon! Talking about MS!

Hey pals, here is a video of me talking about my MS pain, and they have animated me!!! Please watch and share as you feel appropriate :) Happy Festive Times xxx https://youtu.be/DD6DCgB1SsY