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@mser79 

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mser79

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

Ocrevus stopped due to COVID19

I was supposed to have my first Ocrevus infusion today but it has been deferred in light of the coronavirus outbreak and I will be treated with Brabio for the time being instead. I had emailed some concerns to my hospital (The National Hospital for Neurology and Neurosurgery in London) as I was worr...

Experiences of Ocrevus

Before I start, I want to say, I know it's early days... I was diagnosed in Aug 2019 with RRMS after 18months with a CIS diagnosis. My initial scan showed lesions but they couldn't tell how old or if active. 6 months later a second scan was stable. 6 months later my third scan showed new lesions wh...

@mser79 

Last reply

mser79

3rd infusion of lemtrada?

Hi I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...

ocrevus

Hi, I'm a 49 year old man diagnosed with MS in August this year. My MS is most likely primary progressive and I have just been told I can start Ocrevus treatment next year. I'm getting pretty worried looking at the list of potential side effects and am wondering if anyone here has personal experienc...

@sofyg 

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sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

Tecfidera/Lymphopenia fail. Next DMT?

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...