Hello.
Just wondering what people's experience of fatigue following Ocrevus infusion was? We were planning on trying to take a trip away (in the UK) immediately after the second infusion. Trying to understand if that's advisable given energy levels?
Thanks
Has anyone recently had an infusion of ocrevus? Were you told to shield after? I'm due another round next Wednesday and I've been seeing mixed information on having to shield again 🥴
What are people’s views on travel at the moment? I’m due to go to Amsterdam with my friend for a few days in August. Obviously I’ll be vigilant with hand washing and social distancing where possible but I can’t imagine the place will be heaving with folk like it usually is. Am I being too fearless? ...
Hi friends. It's been a while since I posted so I'll give you a quick run down. I went off all ms meds in sept of last year due to having a 1 in 100 chance of contracting PML. Then in december I had a flair up that had me in bed until march. It was horrific to say the least. So in march I started my...
I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...
Hey guys. Havnt posted for acouple of months. I have finally had my first half dose of ocrevus and feel amazing!!! Been postponed since march because of covid. Also I was apparently the first patient to receive it at my hospital, which got the green light in January that they can start doing it!!!
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To the tune of The Hair Bear Bunch
In the Lockdown Zoo, where the certain folk who,
stay at home every night, always quarrel and fight,
AW, WE SOMETIMES BITE!!! SO DON'T YELL HELP! HELP!
Here comes the gap, HELP! HELP! here come the gap,
HELP! HELP! here come the gap. LET'S SPLIT!!! HELP!
IT'S THE...