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ocrevus

Hi, I'm a 49 year old man diagnosed with MS in August this year. My MS is most likely primary progressive and I have just been told I can start Ocrevus treatment next year. I'm getting pretty worried looking at the list of potential side effects and am wondering if anyone here has personal experienc...

@Hlyndar89 

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Hlyndar89

Travel and Covid19

What are people’s views on travel at the moment? I’m due to go to Amsterdam with my friend for a few days in August. Obviously I’ll be vigilant with hand washing and social distancing where possible but I can’t imagine the place will be heaving with folk like it usually is. Am I being too fearless? ...

@pinkcandystick 

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pinkcandystick

Swatting MS with a stick!

Hi friends. It's been a while since I posted so I'll give you a quick run down. I went off all ms meds in sept of last year due to having a 1 in 100 chance of contracting PML. Then in december I had a flair up that had me in bed until march. It was horrific to say the least. So in march I started my...

@Constance56 

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Constance56

Hello all!

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

@kittyks 

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kittyks

TreAtment

Hi guy I was wondering if you have treatment for Ocreus do you have to shield or can return back to work... Please let me know Thank you

@watsoncraig 

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watsoncraig

Crap Gap

To the tune of The Hair Bear Bunch In the Lockdown Zoo, where the certain folk who, stay at home every night, always quarrel and fight, AW, WE SOMETIMES BITE!!!
SO DON'T YELL HELP! HELP! Here comes the gap,
HELP! HELP! here come the gap, HELP! HELP! here come the gap.
LET'S SPLIT!!! HELP! IT'S THE...

@sofyg 

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sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

@Dave_Smith 

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Dave_Smith

Ocreus

Been waiting 2 years to start on Ocreus now, had blood test after blood test its like the doc always finds some thing to stop me starting on it. I've not heard from the ms team since the being of March and that was a letter about my last blood test. feel like im banging my head on a wall.

@Kelly_Brown 

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Kelly_Brown

Ocrevus - Shielding.

Hello everyone, hope youre fairing well. Im having my second round of ocrevus (so first full dose not the half doses) on the 12th of August and have been told i have to shield for six weeks after. I understand why but ive been really careful for the whole outbreak and just as we get to a point wher...

Ocreus

Been waiting 2 years to start on Ocreus now, had blood test after blood test its like the doc always finds some thing to stop me starting on it. I've not heard from the ms team since the being of March and that was a letter about my last blood test. feel like im banging my head on a wall.