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Shingles/ mystery flare

Hey everyone, thanks so much for your comments and support on my last post. Really appreciated it! ❤️‍🩹🙏 where I was having a lot of symptoms and weird sensations that had me scared. Since then it all got much worse the past few days where I just had super weak achy limbs, exhaustion and strange n...

@45522323s 

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45522323s

short title

short about mainly to test a username that is majority numbers

Bi Monthly

Our monthly meeting went well although numbers were low. our next meeting is planned 27th Sunday 12.00 Holiday Inn Kidderminster road Bromsgrove, make a note of the date and try to attend www.wholesorts.com my BiMonthly blog is still out there with a new one on the way

@Aaron_Holden 

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Aaron_Holden

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...

@Carole-Ann_Scott 

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Carole-Ann_Scott

New symptoms not a relapse?

Hi again So I’ve just met with my neuro - was told this was to start treatment however it was not the case! He explained they the new symptoms of neuropathic leg pain with tingling/numbness in March this year he does not think is a relapse at all but is being caused due to an old lesion on my spinal...

Newbie

Hi I'm new to this group, I was diagnosed June 2020. My first symptoms started 2hrs ago as Carmel tunnel syndrone. My right arm would go numb for a few minutes and I would shake it off. January 2020 I went to ER with symptoms of right sides numbness and when I bend my forward I feel an electric ting...

@caroleroberts 

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caroleroberts

Can't turn over in bed

Since getting numb lower legs I found if I lay on my back in bed keeping legs straight..its impossible now to lift legs up off bed..i try one then the other..no solid weights won't move! Now this last week I can't roll over off my back..i have to draw knees up and flop knees over if I want to get on...

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

@apop 

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apop

Always relapsing no remmition ...

My name is Ana. I was diagnosed with MS relapsing remmiting type in 2015. The onset of my MS started in 2011 but I didn't know it. I was diagnosed first with severe Anxiety/Depressive disorder with Panic attacks. I am in constant nerve pain, numbness, spascisity and other symptoms. The evenings are...

Baclofen and pregnancy

Hello! Has anyone taken baclofen throughout their pregnancy? I came off it in order to have a baby but now I’m pregnant I am suffering so bad with leg spasms :( I can’t relax or sleep and I’m at my Whitt’s end but I am scared to take it as the study numbers are so low. I don’t think I can go on like...