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Shingles/ mystery flare

Hey everyone, thanks so much for your comments and support on my last post. Really appreciated it! ❤️‍🩹🙏 where I was having a lot of symptoms and weird sensations that had me scared. Since then it all got much worse the past few days where I just had super weak achy limbs, exhaustion and strange n...

@45522323s 

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45522323s

short title

short about mainly to test a username that is majority numbers

Bi Monthly

Our monthly meeting went well although numbers were low. our next meeting is planned 27th Sunday 12.00 Holiday Inn Kidderminster road Bromsgrove, make a note of the date and try to attend www.wholesorts.com my BiMonthly blog is still out there with a new one on the way

Numbness - how does it feel?

Hi, I have been diagnosed with RIS (Radiologically Isolated Syndrome) - basically I have quite some lesions that I accidentally found out about, but never had any symptoms (female, 29-years old). I have a 6-month old daughter and about 3 months ago I started to experience some kind of numbness in ...

@Aaron_Holden 

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Aaron_Holden

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...

@Carole-Ann_Scott 

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Carole-Ann_Scott

New symptoms not a relapse?

Hi again So I’ve just met with my neuro - was told this was to start treatment however it was not the case! He explained they the new symptoms of neuropathic leg pain with tingling/numbness in March this year he does not think is a relapse at all but is being caused due to an old lesion on my spinal...

@caroleroberts 

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caroleroberts

Can't turn over in bed

Since getting numb lower legs I found if I lay on my back in bed keeping legs straight..its impossible now to lift legs up off bed..i try one then the other..no solid weights won't move! Now this last week I can't roll over off my back..i have to draw knees up and flop knees over if I want to get on...

@Henrietta 

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Henrietta

Diagnosis - the long and winding road

2001 Optic neuritis. Go blind suddenly - and fortunately temporarily - in one eye. Ophthalmologist sends me to neurologist. The neurologist tells me in a jovial tone to say that I have had optic neuropathy to insurers - if I say optic neuritis they’d put me down as having MS. MRI done. No follow up...

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

Newbie

Hi I'm new to this group, I was diagnosed June 2020. My first symptoms started 2hrs ago as Carmel tunnel syndrone. My right arm would go numb for a few minutes and I would shake it off. January 2020 I went to ER with symptoms of right sides numbness and when I bend my forward I feel an electric ting...