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Hi everyone, especially those with PPMS, I watched a video of Prof G via ms society & im sure one of his slides said progressive ms patients should shield. Is that correct? Colette

Hello Just thought I would say hi and try to reach out to anyone who are successfully managing their MS and are fortunate to be their own boss. I feel that I need to start to work for myself as whenever I have been in employment I seem to get unlucky and hit problems. Mainly down to having MS and...

Hi all, I am seriously new to all of this, My RRMS journey has been a whirlwind. I had the MRI and got diagnosed literally overnight. Multiple MS occurences all at once. After a huge course of steriods Methylprednisolone 1000mg 5 days. My flares have calmed down. Not gone away, I my hands are numb a...

Hi I’m so sorry if this is inappropriate but I’m just upset and don’t have anyone I feel will understand to talk to. I have just come off a telephone consultation with my (very nice) GP. I had an MRI as I have been having symptoms that my GP agreed sound like MS for ages - even years. I’m 36yrs old....

Hi everyone! Three months ago I delivered my baby girl via C-section. Scar has healed very well but since the catheter was taken out the day after I have had problems with my waterworks on and off. Some days I have no pain or urge to go and other days the urge will be there all day sometimes and...

Hi all, I wondered if anyone could help answer some questions/give their experience.... I was diagnosed in May this year with rapid RRMS following loss of sensation/power in right leg/Side in December 19 and then optic neuritis in April 20. First MRI was in March 20. I was originally told I would r...

A couple of people in another MS group I'm in have been told they can have their next infusion but they will have to self isolate for 12 weeks after. Anyone else had this ?

Hi everyone. Apologies that my question is not MS related but as Psoriasis is also an autoimmune condition I'm hoping someone will have some advice. For the least 5 years, my friend has been struggling to get treatment or even get an appointment at the local NHS Trust because her "condition is not ...

Need to get something off my chest....... so fed up, diagnosed 24th March 2020. Still no communication, phone calls or anything else from any health care professional. I keep reading about asking your ms nurse for advice - think I’m losing it cos I’m still waiting.

This report might upset the bean counters... have a read of this. https://multiple-sclerosis-research.org/2020/06/no-patient-with-secondary-progressive-ms-should-be-left-behind/