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@Vixen 

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Vixen

SPMS rejection

Time to get campaigning again folks; NICE have rejected Siponimod for SPMS in the UK https://www.mstrust.org.uk/news/siponimod-active-secondary-progressive-ms-rejected-nice Might have to get my battle hat on again.....

@UpsandDowns 

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UpsandDowns

Relapse Symptoms

Hi everyone, I am abit frustrated.. I can not find what l am looking for in any MS related sites. Do i have to have a relapse to get steroid injection in other words can i have steroids to dampen down the symptoms I have been experiencing? Thanks

The coronavirus and MS – updated

From the International MS Federation. June 2020 - https://www.msif.org/news/2020/02/10/the-coronavirus-and-ms-what-you-need-to-know/ - Just the latest, that is all.

@Ralee 

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Ralee

Paddle Boarding

Happy Tuesday everyone! So I was really chuffed yesterday, I went out on the board for the first time in a year. The family and I love going to Sandbanks and we had a good day in the harbour. I was nervous, because last year, my brother and I (Identical twin) went for a swim and I realised very qu...

@Rosie_Paolo 

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Rosie_Paolo

Feel a bit deflated and stupid

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

@Dawson.McWatch 

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Dawson.McWatch

Post for men

I'm wondering if any men have experienced fertility issues? I'm on Ocrevus and wondering if the drug (or MS in general) can affect my sperm count/motility. Was it harder to conceive or were you even able to get your girlfriends/wives pregnant at all?

@Erusha 

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Erusha

Life expectancy

Hi guys I just read the average life expectancy of someone with ms is 25 to 35 years after diagosis Anyone with any thoughts?

@JayJay10 

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JayJay10

MS diet and JUSTEAT.

I have a relatively decent diet and try to look after myself the very best way I can, but when JUSTEAT comes knocking on my brain, I surrender in purchasing everything I see. Mexican, Chinese, Indian. I can be quite the pig when it comes down to it, yet I can't put the weight on. :( Have a great ni...

@KeepSmyelin99 

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KeepSmyelin99

Checking in! :D

Hi everyone! I'm just coming back to check in as I realise I've not been around for a while. I had NEDA (No Evidence of Disease Activity) on my last MRI and have been feeling fine since then *touch wood* I became friends with an amazing woman who also has MS and hosts a podcast about living with a...

@Sonnnsonnn 

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Sonnnsonnn

Mental health and Lockdown

Hey, I have been in lockdown with my family since 17th March and as of recent (the past week or so), I have really struggled with my mental health. I suffer from depression which is believed to be due to MS, so I take 50mg Sertraline a day. As I have been extremely down the past few days my partne...