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I have primary progressive MS, and have been trying for a long time to get access to ocreveus, they tell me you have to have recent activity in your brain or you will not get it, i feel my condition has worsened and surely this treatment is worth trying whether you have any brain activity or not, i ...

Hi everyone! I've found out my MDT are shifting me onto natalizumab, and I want to get people's opinions on how its improved their MS and how you feel about side effects you may get? I know I hate the post injection reactions from copaxone. I've also read that you can take it up to conception, main...

Hello this is my first post, although I have been following the forum for several months. I was diagnosed in January and my MS nurse recommended the site. I want to say thank you to you all for all the support you give to each other and new people like me and loads of information that I have picked ...

Has anyone else dealt with hair falling out or hair loss? I've been dealing with MS symptoms for a little over a year and have noticed that my hair falls out much more than it used to. If I run my hand through it I might come away with five or six hairs. I've noticed I tend to lose eyelashes and bro...

Hi, I’m Kim ! I’m 48, about to be 49 . I’ve had RRMS for 11 years now . What a blow to be hit with in your 30’s . I was diagnosed the same time I had to get breast surgery . My now , EX husband wasn’t too much of a supportive man during my years of battling meds and seeing which ones helped 🙁 But...

Why.is this site called shoft MS?

I'm now 55 i was diagnosed in 2013 and i have just carried half disbelieving that i have ms but have got to a stage that i have had to tell work and everyday is a uphill struggle and my neurologist said that it may be time to take early retirement and I havent got a clue where to start.

Tingling in arms / hands - MS or not Hello. I have been diagnosed with RRMS and wondered about a strange issue with my hands/arms In both arms I can run my finger lightly down my inner edge of my forearm, thumb side, and it is kind of numb and tingly at the same time. It can give me tingly hands too...

So, I received CCSVI in Bulgaria, I whole heartily believe that it did work other than that I collapsed.. of course they no longer do it. So here is my question. They reposted that I have a 90% blockage on my jugular and I cannot remember the percentages on others. So take MS out of the equation sho...

Hi I’m Christine This is my first post . Now I have PPMS . This has been a whirlwind of so many ups and downs . I was DX in 2003 with RRMS. Mine really started going down hill 5 years ago. I have been having so much pain in my shoulders and legs. My left foot and ankle swell really bad if I walk to...