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MS summit

There is a free Virtual MS summit going on at the moment organised by the MS Gym, if you’re interested https://themsgym.mykajabi.com/SummitAnnouncement to sign up.

@Stumbler 

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Stumbler

Pain!!

There is a very good blog analysing pain, the causes and treatments, available here :- https://mirandasmsblog.com/2019/10/10/pain-in-ms-treatment-and-managment-options/

@Laura_Martin 

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Laura_Martin

Hello All

Good morning all, My name is Laura and I’m 30 years old. This morning I’m sitting waiting to take my first Tecfidera tablet which was delivered yesterday. I genuinely thought I just had damaged nerves in my back from pushing myself at an exercise class, falling over as my leg stopped working and no...

@Aiga_Akmentina 

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Aiga_Akmentina

Does food and drinks effect how we feel?

From positive and active days to a day like this...more slow and feeling tired of everything. Sometimes I`m thinking and trying to understand is it just the case of MS. I somehow start to see correlations between my slow days and days where I feel active and positive! I have read and heard that foo...

@Aiga_Akmentina 

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Aiga_Akmentina

MS everyday support/ opinion

Years ago I needed to change my life completely! Why? That was not my choice but my health conditions. I was diagnosed with MS and it felt heavy to carry with me. After 17 years living with MS I feel that there is something more I can do. I`m thinking of creating MS mom needs serving, supportive, a...

What digital services do you use?

Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (o...

@twiggy3 

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twiggy3

Flare up / relapse

Hi to you all , it's not a relapse I'm having as mri shows no new lesion. But my old symptoms have flared up for 5 weeks now which is getting me down. Can a flare up last week's/ months. Never had this happen before, as I've been symptom free for 16 yrs. Had ms 22 years . Any info id appreciate. Th...

@Miranda_McNair 

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Miranda_McNair

Newly Diagnosed: 6-29-20

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...

@Tania_Pilz 

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Tania_Pilz

Waking up with numb hands

Hello MSers! I was wondering if you have ever woken up with numb hands and if this could be related to MS or medication (Tecfidera)? This sensation is different, is just like when you sleep in a weird position and your arm or legs fall asleep, very different from the normal MS numbness and tingling...