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Thanks to everyone who came to the live PPE for the Mind session this morning with Gemma and Jo - if you were there, say hi below 👋 - If you’ve missed any episodes and have no idea what PPE for the Mind is, we’ve been releasing a video a week about how to build your mental six pack and build a resi...

I have been using fingolimod almost 18 months and recently l have been constantly ill, flue, coughing and others and in the last couple of months a scaly, itchy lesion or patch appeared on the outside of my right arm which does not seem to be healing and fits with the descriptions of skin cancer tha...

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

Hi everyone, I'm currently planning on moving to Dublin, Ireland within the next 6 months and I'm starting to think about changing neurologists. I will obviously have to get a referral from my GP to see a neuro. I've been told that it can take up to 6 months to get an appointment!! Does anyone ha...

More of the type of research we can all support ;-) https://multiplesclerosisnewstoday.com/news-posts/2020/06/30/boosting-mitochondria-cellular-energy-at-myelin-loss-sites-may-stop-ms-progression/

Hi all! I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because...

good afternoon everyone it's been a while since I last posted anything! My neurologist didn't give me anything new to help my ms she still prescribed me copaxone and she said to stop taking it for a few months and then start taking it again! Since I stopped taking it I have been feeling great having...

Hello people I am a little new at this posting questions. But I thought I’d give it a go. Who better to ask than the ma community. I was diagnosed with ms after having optic neuritis About 8-9 years ago. Since then I have very few symptoms. I do suffer what I Describe as a ice cold feeling/ pain ...

Hi I have been diagnosed with RRMS a couple of weeks ago. I am 41 and it would seem that I have had MS for years, although I haven’t been aware of symptoms until April. My MS is very active with a lot of inflammation. I have been recommended cladribine, which seems very good and not intrusive. I jus...

Hi guys. I've got epilepsy because of a lesion (yay), and talking to my gp, hes said that when I do start trying for kids, to discuss with him first because of my lamotrigine. So, obviously, I've looked on the bnf (a very good resource for looking at meds, and its what health professionals use) and ...