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This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

Hi all I have rrms and I take fingolimod for this I work as a nurse on the front line , my ms nurse advised that I self isolate for 12 weeks at the beginning of coronovirus but I stayed at work until 2 weeks ago and my manager signed me off on medical suspension due to risk as icu became all covid...

Hi everyone. Haven't posted much lately but I felt inclined to share today. So, I hadn't had a brain MRI in 2.5 years, and they finally set me for one last month. I don't see the dr until February so I asked my chiropractor (who also does neuro rehab etc) to get the results for me. We went over th...

Hi everyone For a while now I've thought about purchasing a bike in order to get in some decent exercise. I'm not great at walking long distances (due to my RRMS), so I was looking for another avenue. However, I'm on holiday at the moment and I thought I'd try out my mother-in-law's bike.... the re...

Is anyone as irritated by the sun and heat as me? I can't go 5 mins without feeling hot and sweaty, direct sunlight and heat make me grumpy. I tried escaping this crazy weather in the mall, and now I'm exhausted from all the walking. 😛 Not sure if this is MS-related, but I need a break from the sum...

Hi Everyone I’ve had MS a while now but have recently noticed (probably as I’ve recently been walking slower and with a slight limp and have probably been looking more fatigued than usual) that people, who do know me, talk to me in the same way as they would a child and/or can be very patronising....

I've had depression since I was a teenager. Now, finally diagnosed with MS, last year, I will get to look forward to when I can no longer fend for myself. Hasn't happened yet. Fortunately, I have worked since I was in highschool. I know that after 35+ years of taxes paid, I am now an elder. I deserv...

Hi all. So, I know, a couple of weeks ago, I had an MDT DMT meeting, discussing my medication and recent relapses and new lesions. Still not received a letter from them, but I know that it can take a couple of weeks. However, a nurse from my MS team called me today, telling me that they'll be booki...

I’d love to hear about everyone’s hobbies and interests- whether it’s something you were into pre-diagnosis that you’ve adapted to work around your MS symptoms, or if it’s something completely new to you that you wouldn’t have discovered without your MS. You never know when someone might need an u...