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I just joined yesterday and I just wanna say how absolutely amazing this site is. I've been fairly unphased by my recent diagnosis, probably because I've known there's something not quite right with me for a while so when I found out it's something that isn't terminal like cancer or motor neuron dis...

At this point I have to just laugh. I was in hospital last week, was diagnosed with MS. Discharged last Friday, put on steroids while in hospital, symptoms cleared up by Tuesday and I woke up this morning with a very, heavy arm with horrible cramps and pins and needles. Tried to contact enable but n...

Has anyone else dealt with hair falling out or hair loss? I've been dealing with MS symptoms for a little over a year and have noticed that my hair falls out much more than it used to. If I run my hand through it I might come away with five or six hairs. I've noticed I tend to lose eyelashes and bro...

Hi everyone! I've found out my MDT are shifting me onto natalizumab, and I want to get people's opinions on how its improved their MS and how you feel about side effects you may get? I know I hate the post injection reactions from copaxone. I've also read that you can take it up to conception, main...

I know I have sensitive ears, for example I don't like watching things too loud. Other people moan it's too quiet for them to hear at the level I watch stuff. I used to get it every now n then when the TV is too loud or people are rasing their voices. It feels like the thin part of your inner ear i...

I'm now 55 i was diagnosed in 2013 and i have just carried half disbelieving that i have ms but have got to a stage that i have had to tell work and everyday is a uphill struggle and my neurologist said that it may be time to take early retirement and I havent got a clue where to start.

Hi everyone, So we used to meet up every month at a gorgeous pub in Victoria, and whilst this has not been possible we have been connecting over Zoom. It's been great to reconnect with old friends who couldn't make the drinks and to meet new people too, including little ones too <3. So, if a...

Hi, I’m Kim ! I’m 48, about to be 49 . I’ve had RRMS for 11 years now . What a blow to be hit with in your 30’s . I was diagnosed the same time I had to get breast surgery . My now , EX husband wasn’t too much of a supportive man during my years of battling meds and seeing which ones helped 🙁 But...

My GP and MS neurologist have suggested a dog. I have MS, Anxiety, Depression, Acromegaly and something the doctors are trying to find out why I am falling all the time. My legs stop working and I fall. Most I have to go to hospital because of concussions.

So, I received CCSVI in Bulgaria, I whole heartily believe that it did work other than that I collapsed.. of course they no longer do it. So here is my question. They reposted that I have a 90% blockage on my jugular and I cannot remember the percentages on others. So take MS out of the equation sho...