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@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

@Katherineee 

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Katherineee

COVID Concerns

Hello MSers, I haven't posted in a while but I wanted to talk about COVID19. Is anyone else worried about not receiving their treatment? I'm on ocrevus and doctors have stopped my treatment as it can suppress my immune system, however, they have also confirmed that the ocrevus inside my body will ...

MRI update was new lesions

I've been on Tech for 4 years and I recently had a MRI scan which showed new lesions (sad and disappointed). Yesterday My Neurologist called to formal tell me of the results. However my brain switched off and I didn't fully listen to what the next step is.

@Emma_Byers 

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Emma_Byers

Face and head pain

Sorry long post!! Finally got a diagnosis in March this year. Been a long haul from 2013. In the last 4 days I've had excruciating pain in my face and a banging headache. Back in 2013 it was optic neuritis I was diagnosed with but I ended up with more symptoms and everything got worse over the years...

Lemtrada, covid and MRI

So at the moment I am about 16 months post r2 of lemtrada, and my MRI was due in April, but it has now been postponed until ... further notice... This gave me immense anxiety and I’ve been having panic attacks for over a month now. I don’t know how to deal with this because even though I appear st...

Mavenclad Success

Hello! I’m one of the very blessed US patients receiving Mavenclad (and for free!!). I started my first round almost a month ago and start the second (and final for the year) in a week. So far so good and I’m pleasantly surprised by how few side effects I’ve experienced. While I expect that the ensu...

@sofyg 

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sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

@cwe33 

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cwe33

Newly Diagnosed.. I think

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...

@WendyHills 

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WendyHills

Working towards yr2 cladribine

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...