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@twiggy3 

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twiggy3

Flare up / relapse

Hi to you all , it's not a relapse I'm having as mri shows no new lesion. But my old symptoms have flared up for 5 weeks now which is getting me down. Can a flare up last week's/ months. Never had this happen before, as I've been symptom free for 16 yrs. Had ms 22 years . Any info id appreciate. Th...

@Miranda_McNair 

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Miranda_McNair

Newly Diagnosed: 6-29-20

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...

@twiggy3 

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twiggy3

What's happening

Had rrms 22 years last relapse 16 yrs ago. Symptom free really so very lucky. A month ago all symptoms came back just like when diagnosed. Mri showed no relapse . Don't know when this will subside . Any info much appreciated. Thanks

@TonyMS47 

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TonyMS47

Ocrevus

I am switching from Tecfidera to Ocrevus. I'd been waiting since the beginning of the year and then the coronavirus came into play. So now I am still waiting. It seems that I had new lesions on my last MRI scan even though I'd been on Tecfidera for the last five years. I just hope this thing starts ...

@AnnaKonuh 

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AnnaKonuh

puzzled

I signed a contract for conducting clinical trials of the drug. My relatives did not approve of my decision and each time they scared me with scary stories and the fact that I would be an experimental mouse🤷. In Ukraine, MS treatment is very expensive, and I think that for me this is a chance to ge...

@KCshea 

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KCshea

Hello

Hello to everyone, I have just joined you. I was initially diagnosed in 2009 with ADEM & thought it was benign MS. I have had ongoing symptoms over recent years which led to a recent MRI showing multiple lesions. The Consultant has diagnosed MS and referred me to Queens Square in London. I ...

@angieH 

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angieH

RRMS to SPMS?

I have read that rrms always eventually becomes spms. Is this so? I have a neuro who says that usually by my age (53 and diagnosed at 29), ms has established the pattern it is going to be. One sounds promising and one not so much. What would clue me in that it’s becoming spms? I have more difficu...

@.Bryony. 

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.Bryony.

Tysabri Eligibility

Hi all, I wondered if anyone could help answer some questions/give their experience.... I was diagnosed in May this year with rapid RRMS following loss of sensation/power in right leg/Side in December 19 and then optic neuritis in April 20. First MRI was in March 20. I was originally told I would r...

@Rosie_Paolo 

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Rosie_Paolo

Feel a bit deflated and stupid

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

@Rose23 

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Rose23

Difficult diagnosis, am I mad!

Hi I’m so sorry if this is inappropriate but I’m just upset and don’t have anyone I feel will understand to talk to. I have just come off a telephone consultation with my (very nice) GP. I had an MRI as I have been having symptoms that my GP agreed sound like MS for ages - even years. I’m 36yrs old....