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@martin 

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martin

Hello @martinshift

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@seaairsally 

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seaairsally

Autoimmune Neutropenia after Lemtrada

Hi community, Does anyone have experience of neutropenia after Lemtrada? Horrid to have to deal with extra things on top of the MS. If anyone has I would love to hear if it’s reoccurred/needed treatment or went away naturally. Thanks, Sal

Sweating

I’ve had RRMS for 4 years and I’ve had 2 rounds of Lemtrada. For years I’ve suffered with extreme sweating and after Lemtrada it’s gotten worse! I literally can’t leave the house as I’ve only got to move and The sweat is pouring off me. I take small electric fans everywhere with me and I have a fa...

@melissa.g 

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melissa.g

Mixed emotions at MRI results

Hi everyone. Haven't posted much lately but I felt inclined to share today. So, I hadn't had a brain MRI in 2.5 years, and they finally set me for one last month. I don't see the dr until February so I asked my chiropractor (who also does neuro rehab etc) to get the results for me. We went over th...

@mser79 

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mser79

3rd infusion of lemtrada?

Hi I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...

@Rachel_Hilton_1 

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Rachel_Hilton_1

Starting anew?

I’m struggling at the moment. As we went into lockdown, my partner of 11 years decided to tell me he effing hates living with me and dumped me, the same week as I had to have my 19 year old dog put to sleep. He knew from the outset of the relationship that I had ms and it is a degenerative disease...

ITP and Neutropenia

I developed ITP (low platelets) and low white count 3 years after Round 2 of Lemtrada. It has been 7 months now and I am taking Promacta for my low platelet counts. My neutrophils are staying low and currently are 0.1. Has anyone else developed ITP or low white counts that lasted this long?

Lemtrada, covid and MRI

So at the moment I am about 16 months post r2 of lemtrada, and my MRI was due in April, but it has now been postponed until ... further notice... This gave me immense anxiety and I’ve been having panic attacks for over a month now. I don’t know how to deal with this because even though I appear st...

@beth26 

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beth26

Tired of being tired

Having a flare up with all my old symptoms , been going on for the last month or so , have had 2 bouts of new symptoms since round 2 of lemtrada 15 months ago , no new lesions on my Last mri Just feeling pretty down about Feeling like I’m Getting worse and struggling doing simple things There are ...