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@Paula_Lewis 

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Paula_Lewis

Cooling vests

Hello Everyone, I am new to this forum. I just wanted to ask for some advice regarding cooling vests/ scarves. My symptoms are much worse during the warmer weather and I was thinking of trying a vest/ scarf. I have looked online and there are many different types available. I just wondered could any...

@EmilyMac 

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EmilyMac

Treatment advice

Hello! I’ve been told today how amazingly positive this site is and I can already see from just having a little nose it’s just what I need! I was diagnosed 3 weeks ago, shock probably was an understatement. I haven’t googled anything really, just had conversations with the Neurologist and my nurse. ...

@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

@melissa.g 

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melissa.g

Mixed emotions at MRI results

Hi everyone. Haven't posted much lately but I felt inclined to share today. So, I hadn't had a brain MRI in 2.5 years, and they finally set me for one last month. I don't see the dr until February so I asked my chiropractor (who also does neuro rehab etc) to get the results for me. We went over th...

Baclofen and pregnancy

Hello! Has anyone taken baclofen throughout their pregnancy? I came off it in order to have a baby but now I’m pregnant I am suffering so bad with leg spasms :( I can’t relax or sleep and I’m at my Whitt’s end but I am scared to take it as the study numbers are so low. I don’t think I can go on like...

@Thorpee 

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Thorpee

AFO/brace for foot drop - running

Hello, has anyone who suffers with foot drop found an AFO that helps you to run. I have one of those which clips into the laces of my shoe and it is great for gentle walking. But running is not possible with it. I've looked at some online but they cost a fortune so it's a lot of money to waste if t...

@Irene_Kostyk 

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Irene_Kostyk

M.S. Warrior

<p>I was diagnosed many years ago and the last 15 years have been really difficult. I continue and I do my share of complaining. But it does help having a place to go with questions. Thank you fellow warriors for your struggles are felt. Stay inside and keep hydrated.</p>

@mser79 

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mser79

Ocrevus- fatigue following infusion

Hello. Just wondering what people's experience of fatigue following Ocrevus infusion was? We were planning on trying to take a trip away (in the UK) immediately after the second infusion. Trying to understand if that's advisable given energy levels? Thanks
London, United Kingdom

@Patrick_Harrington 

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Patrick_Harrington

Old Man PAT here

Hello have had MS since 1970, still walking but falling more but I was expecting that. Question I was on Aubagio 4yrs and stopped taking 1 month ago. Now experiencing more balance issues. What are the withdrawal symptoms if any?