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@laurianne25 

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laurianne25

To those with Avonex experience

I took my first 1/4 dose yesterday around 6 pm. For awhile, I didnt feel anything. Around 5 hours later, I woke up with violent shaking chills, but managed to sleep off and on. A couple hours later, I woke up very nauseous and vomited a couple times. I went back to sleep, and when I woke up this mor...

@sofyg 

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sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

@VanBax 

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VanBax

Amantadine

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

@AdrianaE 

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AdrianaE

Coimbra Protocol

Hello! Anyone here following Coimbra Protocol? Have you ever hear of it?

@Ciara_Fisher 

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Ciara_Fisher

Gilenya and Pregnancy

I’m struggling with the thoughts of when I want to start trying for a baby next year. I’m in college and graduate in September and I always said I wanted to start trying once I’m finished college but now that I’m on Gilenya everything has to be planned. Ideally I don’t want to finish college off my ...

@WendyHills 

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WendyHills

Working towards yr2 cladribine

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...

Heat

The heat and humidity and going to be terrible today. Here in the midwest of the United States. It's going to be around 100° Fahrenheit + We have broken out all the big fans and the air-conditioning so we should be okay. Now I've just got to avoid going outside.

@HelenJR 

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HelenJR

Unsolicited advisors

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

Pregnancy & Tysabri Help

I am looking for advice from people who have taken Tysabri while pregnant. I just started my 3rd trimester and I would like to continue taking Tysabri through the whole pregnancy. It is very hot where I live right now and I am scared that if I stop the Tysabri my symptoms will get much worse. I also...