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@ColettePage 

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ColettePage

Child minding granddaughter

<p>My 14 month old granddaughter lives with us (along with her parents) plus my other sons. 2 are mental health key workers, my daughter in law is a nursery nurse key worker (currently furloughed) and my youngest at uni is earning money working part time as a key worker in Farmfoods frozen food shop...</p>

Feeling better or worse after infusions?

<p>Hi,</p> <p>I just had my latest infusion of Rituxan (after a COVID delay), and I always feel terrible afterward, but I’ve heard people say they feel better after treatment. Is this a case of “no two the same,” because of different DMTs, a combo? Just curious as I sit here in my post-infusion blah...</p>

@Indie 

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Indie

Mavenclad and instruction to Shield

<p>Hi 👋 I completed my first round of Mavenclad in February of this year and received my letter from the Government asking me to “Shield” for 12 weeks in March, due to the risk of possible complications from COVID-19. At that time my lymphocytes were 0.8. Does anyone know what lymphocyte level we a...</p>

@thirteen 

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thirteen

Newbie here

<p>Need some advice. I have had health issues half my life. First started when I was about 16. I’ve been trying to find answers for years. Just recently found out that Ms was put in my medical records 2 years ago, although the Dr never verbally told me this. I also have trigeminal, occipital a...</p>

@Irene_Kostyk 

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Irene_Kostyk

M.S. Warrior

<p>I was diagnosed many years ago and the last 15 years have been really difficult. I continue and I do my share of complaining. But it does help having a place to go with questions. Thank you fellow warriors for your struggles are felt. Stay inside and keep hydrated.</p>

@Isabel 

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Isabel

Tysabri

Can anyone tell me if Tysabri infusions are free I have been recently been diagnosed with RR MS and will be starting this infusion soon. Are they free if you only have private health insurance 😊

@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

A Vaccine is 12-18mo Away, At Best

I am not trying to be a party pooper here. Why would I? I wrote a bit about them here https://shift.ms/topic/doms-covid-diary-sat-25th-apr This is an excellent piece from a pharmaceutical market analyst. These folk really don't care about you or me, they are in it for the money. End of. Have a re...

@Bigpeg88 

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Bigpeg88

Tysabri changes...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...

@Robean 

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Robean

Nurses with MS

<p>Hi all, just wondering if there are any other nurses out there?? </p> <p>Are you still going to work?? </p> <p>I was planning on carrying on going to work and just being extra careful and socially distancing myself in my personal life (aka not going to shops and restaurants etc) but then I spoke...</p>