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@fuzzy9 

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fuzzy9

PPMS

Hello! I was recently diagnosed with PPMS. Ever since I have had usually heartburn and swallowing issues. I visited gastroenterologist some months ago and according his review I had no visible problems when swallowing. The question is that can MS cause problems with swallowing? Whenever I try to sw...

@Alice352 

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Alice352

How long AE after pulse therapy?

Hello everyone! I was recently diagnosed with optic neuritis (and what apparently has been MS for several years now) and after long consideration I finally decided to opt for steroid pulse therapy (5 x 1000 mg methylprednisolone). The first few days were fine, I didn't experience any euphoria, slee...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

@AdrianaE 

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AdrianaE

Coimbra Protocol

Hello! Anyone here following Coimbra Protocol? Have you ever hear of it?

@Piper 

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Piper

Coldness in limbs

Hi. I'm Piper. I have PPMS. I've never experienced a remission. This month has been extremely frightening because at 1st, it was just my right foot getting cold..(noticeably much colder to the touch)..(not the numb-like feeling as much). Now, by midday, the coldness has reached just up above my knee...

@Aaron_Holden 

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Aaron_Holden

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...

@DesN 

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DesN

Fun day out 🙂

Heres a good one! Decided to take my 16 year old boy to Alton Towers for the day about 6 weeks ago... nice bit of son Dad time... took advantage of the fact that you can use the disabled card to book my son in as my carer for the day for free... well why shouldnt I hear you say. When I got to the g...

A virtual future: MS Care

https://www.youtube.com/watch?v=mzaidLfVgSY&feature=youtu.be The world 🌍 of health is adapting to an entirely new way of operating, including switching to digital delivery of care and telemedicine. But what does this mean practically for people with MS? 🤔💭 In episode 1 of this miniseries, we’re ...

Thought please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@Lynn_Johnson 

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Lynn_Johnson

Shoulder pain

Does anyone get pain in their shoulder, can't lift my arm to brush my hair, sometimes my wrist but no injury. Do you the hot summer heat causes this.?