Sort 192 results by

Page 18

@Ray_Thomas 

Last reply

Ray_Thomas

Eyes

Hi Since my last relapse , a year ago in May - my eyes have been a real problem. not double vision as such.., I assume its just a mild version of my vertigo , that never went away It's worse if i have been in a room for a while then go out side ! looking around and left to right quickly is a no no...

Watch AWAKE | A film about insomnia & MS

https://www.youtube.com/watch?v=R1RpZtnUrsw&feature=youtu.be Inspired by conversations from right here in the Shift.ms community 💬 'AWAKE' is the latest film that explores the interplay between MS, sleep and mental health 🛌💤😪 THANK YOU so much to all those involved in the filming of AWAKE. A...

@mser79 

Last reply

mser79

3rd infusion of lemtrada?

Hi I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...

Mavenclad

Hi i was diagnosed with RRMS in 2012 when i was 26. Now 33 I've tried Copaxone, Gylenya and am on my second year of Mavenclad. With Copaxone i had a relapse and never felt any relief. Also i have permanent divots in my legs and arm because of it. Gylenya I was happy with but still finding symptoms w...

Sweating

I’ve had RRMS for 4 years and I’ve had 2 rounds of Lemtrada. For years I’ve suffered with extreme sweating and after Lemtrada it’s gotten worse! I literally can’t leave the house as I’ve only got to move and The sweat is pouring off me. I take small electric fans everywhere with me and I have a fa...

@laurianne25 

Last reply

laurianne25

To those with Avonex experience

I took my first 1/4 dose yesterday around 6 pm. For awhile, I didnt feel anything. Around 5 hours later, I woke up with violent shaking chills, but managed to sleep off and on. A couple hours later, I woke up very nauseous and vomited a couple times. I went back to sleep, and when I woke up this mor...

@sofyg 

Last reply

sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

@VanBax 

Last reply

VanBax

Amantadine

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

@Ciara_Fisher 

Last reply

Ciara_Fisher

Gilenya and Pregnancy

I’m struggling with the thoughts of when I want to start trying for a baby next year. I’m in college and graduate in September and I always said I wanted to start trying once I’m finished college but now that I’m on Gilenya everything has to be planned. Ideally I don’t want to finish college off my ...

@WendyHills 

Last reply

WendyHills

Working towards yr2 cladribine

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...