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@MattW 

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MattW

Sildenafil thoughts please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@Shannon_OHara 

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Shannon_OHara

Next drug is cladribine /mavenclad

Hey guys, I've been diagnosed with Ms since I was 13 and had lots of scarring before then, had nearly 10 years of treatment. However, my Ms keeps becoming active. The next and only drug they are suggesting is cladribine /mavenclad. So taking it for the short amount of time over two years. I'd lik...

@laurenlucyjane 

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laurenlucyjane

Super fun new symptoms!!

Hey guys, So I was diagnosed in January and after recovering mostly from my first noticeable relapse I thought I was doing just fine. In the last month or so I've been having some bowel and bladder problems such as urgency and hesitation etc it's making me scared to leave my house or walk far or go ...

@MiaPi 

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MiaPi

Copaxone switch to Tecfidera

Hello all, So I have been on Copaxone for 3 years. 1st year all good no relapse or new MRI lesions. Second year I got one new lesion but since it was also small my dr said let’s stay on Copaxone. Now my latest MRI showed one new lesion but at the same time I got lipoatrophy on my thigh from the Cop...

@Rachel_Fenn 

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Rachel_Fenn

Just Diagnosed.... Help!

Good afternoon everyone. My name is Rachel, a 33 year old mum to a very energetic 7 year old boy. I have very recently been diagnosed with MS and after having my first call with my hospitals MS specialist today they put me in touch with this very special and unique site. I am very new to this an...

@angieH 

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angieH

Should I know if it’s a relapse?

I have been feeling so crappy. I am diagnosed with RRMS since 1998 at age of 28. No real problems until 2017! When I had a flare up main symptom dizzy and fatigue - severe. I recovered nearly complete, went on my first dmt copaxone. Annual mris were fine, a couple of small lesions even disappeare...

@lemtrada-uk 

Last reply

lemtrada-uk

Flushing the system during a UTI

I have a UTI & my doctor prescribed me antibiotics as well as advising that I drink plenty to flush the system. Is it a good idea to occasionally use a self catheter to completely rid the bladder of urine or should I empty the bladder naturally? I use intermittent self catheterisation on a month...

MS patient led study on Qigong for MS

Hi. My name is Cara & I have had MS for 15 years. I started a company, The SwitchVR, 3 years ago. Our purpose is to develop holistic therapeutics (i.e. meditation, mindfulness, Qigong) using technology so that we can offer complementary practices for MS patients, like myself. Our first product i...

@Solo 

Last reply

Solo

After effects of optic neuritis

I know there is lots here about optic neuritis, but I wanted to ask if anyone has had their vision recovered but been left with discomfort ever since. I had ON a year ago and lost partial vision in the eye but it returned within 2 months. However now a year on I Continue to get intermittent but dail...

@oscarb 

Last reply

oscarb

Healthy Options

Hi All, I am new to this site and wanted to introduce myself. I was unofficially diagnosed with MS whilst living in the US but due to limited understanding and MRI facilities in the UK, not officially diagnosed until 2008. Currently medically retired and enjoying life. I have spent the lockdown peri...