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Hi community, Does anyone have experience of neutropenia after Lemtrada? Horrid to have to deal with extra things on top of the MS. If anyone has I would love to hear if it’s reoccurred/needed treatment or went away naturally. Thanks, Sal

Hi I have Ms for the last 8years , diagnosed at 21, I haven’t luckily had many pains up till now, basically haven’t been able to sleep due to spasm in feet , now given beclomec but don’t find it works , have any followers or volunteers heard of anything that does, nuisance as much as pain uncomforta...

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

Hi everyone :) I am getting close to an appointment with a general specialist physician to get the ball rolling for testing to get to the bottom of a big range of symptoms. Some I have been experiencing for a number of years, others have shown their face over the last few months. Due to Covid-19 it...

Im due my tysabri infusion tomorrow but have two days left of antibiotics for a uti can i still get it?

Hi All, I was diagnosed November 2019 with RRMS. I was put on Rebif which the only complaint i have is the red marks it leaves but would have happily gone on with it. Yesterday i met with a new neurologist after my previous one had left. I had an MRI in advance and there was one small new very sma...

Hi, just wondering if a person could be misdiagnosed with MS? Just thought about the fact there is no definite test and lots of conditions that can mimic MS. I thought I would ask if anyone has heard about this happening to someone? Thanks 😊

I am a 64 yrs. old with no medical insurance. I have gradually had several unexplained physical symptoms of MS since I had a total hip almost two years ago, of course I didn’t immediately suspect MS...I have done a lot of research on every new symptom that would come along these past two years! I g...

Just wondering if a stiff and painful neck and shoulders is likely to be a relapse? I woke up a couple of weeks ago with a really stiff neck and it was really hard to sleep and move it which I put down to camping in the garden. I spoke to my neuro a week or so ago and he thought that my aches and p...

Hi thank you for my membership, I’m looking forward to hearing from and about you! I’m looking for advice and also keen to learn if anyone else feels like their internal thermostat is broken. I do not know what triggers it. I sweat 💦 so much that it is making me feel pretty crap. Along with the swe...