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@NicciS 

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NicciS

In need of some positive words!

Hi, feeling fed up. I'm just about to move on to my 4th DMT in 5 years. So far I've done Tecfidera, Gilenya, Aubagio and now on to Ocrevus. Any positive stories anyone can throw at me would be gratefully received right now!

@Ian_Johnson 

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Ian_Johnson

First Posting

Hi, first post. I was diagnosed almost 7 years ago, in 2013. Initially, I was diagnosed with PPMS, this was changed to RRMS a year later after a big relapse that made it difficult to speak and walk. Almost straight away, I was put on Baclofen and began 2 years of Tysabri. Eventually, I was able to w...

@Tara_Scully 

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Tara_Scully

Need some advice

Hi All, I was diagnosed November 2019 with RRMS. I was put on Rebif which the only complaint i have is the red marks it leaves but would have happily gone on with it. Yesterday i met with a new neurologist after my previous one had left. I had an MRI in advance and there was one small new very sma...

@KatieLondon 

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KatieLondon

Horrible month

Hi all have had a rough month, came off of Gilenya, started Tysabri, then had a terrible relapse couldn’t walk stand or barely move. I’ve has 10 days of intense steroids my walking drop foot are starting to get more manageable and life is finally starting to get back to normal. Hope everyone else i...

@Ciara_Fisher 

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Ciara_Fisher

Tysabri or Mavenclad

I’ve had to come off Gilenya because it caused me to have deranged LFTs and since being off it I’ve had a a new lesion form on my spine. I just don’t know whether to start Tysabri or Mavenclad. I don’t know if I want to have to get infusions every month but I could go straight back to work once I st...

@cailindeas 

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cailindeas

MS and breast feeding

Hi, I'm Mammy to two wonderful little men, the youngest being 5.5 months. I was due to go back on Gilenya sooner but as I'm sure is the case for so many, restart was delayed because of Covid. I'm due to go back on in over 2 weeks but can't get my little one to take a bottle. I've tried different ...

@bannie05 

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bannie05

Ocrevus vs gilenya

I am going to be taken off Tysabri due to high Jcv. I have been told I will be offered either ocrevus or gilenya. So confused, if anyone can let me know how either is working for them I would be very grateful.

@Paula_Underwood 

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Paula_Underwood

MS and herpes

hi all, I have MS on gilenya I have just found out a guy i am dating has herpes. Im concerned that if i do have it which is highly likely that being on my immune suppressant could be an issue for me. Has anyone been through this and can give me some advice. Can I keep taking my meds?

Mavenclad

Hi i was diagnosed with RRMS in 2012 when i was 26. Now 33 I've tried Copaxone, Gylenya and am on my second year of Mavenclad. With Copaxone i had a relapse and never felt any relief. Also i have permanent divots in my legs and arm because of it. Gylenya I was happy with but still finding symptoms w...

@SJ1990 

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SJ1990

Coming off gilenya?...

Has anyone come off gilenya?? I've been on it for 4 years and they want to take me off it now and switch me back to tysabri due to reactions from it. I really want to have a break from medications and see if I can treat it naturally but have been told that symptoms/relapses can come back with a veng...