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@Shannon_OHara 

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Shannon_OHara

Next drug is cladribine /mavenclad

Hey guys, I've been diagnosed with Ms since I was 13 and had lots of scarring before then, had nearly 10 years of treatment. However, my Ms keeps becoming active. The next and only drug they are suggesting is cladribine /mavenclad. So taking it for the short amount of time over two years. I'd lik...

@MiaPi 

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MiaPi

Copaxone switch to Tecfidera

Hello all, So I have been on Copaxone for 3 years. 1st year all good no relapse or new MRI lesions. Second year I got one new lesion but since it was also small my dr said let’s stay on Copaxone. Now my latest MRI showed one new lesion but at the same time I got lipoatrophy on my thigh from the Cop...

@Alice352 

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Alice352

How long AE after pulse therapy?

Hello everyone! I was recently diagnosed with optic neuritis (and what apparently has been MS for several years now) and after long consideration I finally decided to opt for steroid pulse therapy (5 x 1000 mg methylprednisolone). The first few days were fine, I didn't experience any euphoria, slee...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

@Aaron_Holden 

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Aaron_Holden

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...

@Paul_Hennessy 

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Paul_Hennessy

What a great Platform ☸

Has anyone never had a days rest?. Always something with my MS spasms pain bladder optic nerve inflammation in the nerve so on so forth never-ending since I was diagnosed I was wondering is this common with MS

@VanBax 

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VanBax

Amantadine

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

@DrLisa 

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DrLisa

Hair loss

Anyone dealing with hair loss? I don’t know if it’s because of MS or a medication, but about half my hair is gone.

@poleyjo 

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poleyjo

First Neurology appointment

So after more than 6 months of real struggle with suspected MS symptoms I finally have my first appointment with a neurologist on Sunday. Can anyone please give me insight on what to expect? I have been tracking my symptoms and will condense this list and take it along with me. Is there anything els...

@Faye_Austin 

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Faye_Austin

Gabapentin

Just started on Gabapentin. Only on one a night at the mo. But it’s making me feel really sleepy. Almost drunk in a bad way. Is this normal ? I’m due to increase my dose but I can’t see me being able to work if I do. Any help please Thanks gang