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Feeling alone

Hi. I was asked yesterday to document my idea of 'My Perfect Day'. I started to write...my perfect day certainly didn't include MS but my reality is that everyday includes something about MS. I'm tired, I'm sore and I don't want to play MS anymore. So back to my narrative. For every few sentences I...

@BULLMAN 

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BULLMAN

I think this is humour 19 ?

I want die peacefully in my sleep like my grandfather, rather than screaming and yelling like the passengers in his car

@lemtrada-uk 

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lemtrada-uk

Cycling with compromised balance

<p>I used to be a keen cyclist prior to getting MS. From losing my balance (and ability to walk unaided for long distances) to today, I haven’t rode a bike for 10 years. Now that my young son has learned how to cycle, he wants me to join him on a short bike rides around our block of streets.</p> <p>...</p>

@lillibet23 

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lillibet23

Covid and work

Hi all I have rrms and I take fingolimod for this I work as a nurse on the front line , my ms nurse advised that I self isolate for 12 weeks at the beginning of coronovirus but I stayed at work until 2 weeks ago and my manager signed me off on medical suspension due to risk as icu became all covid...

@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

@Robean 

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Robean

Nurses with MS

<p>Hi all, just wondering if there are any other nurses out there?? </p> <p>Are you still going to work?? </p> <p>I was planning on carrying on going to work and just being extra careful and socially distancing myself in my personal life (aka not going to shops and restaurants etc) but then I spoke...</p>

Intermitent fasting Keto diet

Has anyone else with MS been helped following a Keto diet? I've been following this for the past 8 months and finding it very helpful, but am aware that it contravenes so much MS advice about keeping to a low-fat diet. Are there any other people living with MS who have also tried this? I'd so love t...

Mavenclad anyone else on it

Finally started treatment I thought it was going to be alot worse than it has been so I'm grateful for that. Or they given me placebo. February is always a though month for me it's the last month I got to speak to my mum. She had MS. Died 2018 it feels like longer. It's still strange to me. Anyw...

Diet

Hi all, Can anybody recommend a diet they feel is helping? I read/see a lot of different things, basically most just recommend cutting out all the so called bad things we westerners eat, days,meat etc ??? I have had some recent issues with having a few items cooked in fat! Stomach aches etc and...

@sofyg 

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sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...