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Hi there, I just finished my 1st cycle of Mavenclad treatment...free now for 4 weeks before the next lot No real side affects...just a little exhausted...more than the usual kind I could feel burning sensation while swallowing the medication..make sure anyone taking this medication has plenty of w...

Hi guys. First post, so here goes - I've gone from R/R to PPMS. It's a bit frightening but it's nice to talk to people who understand. I've been put on the W/L for Rituximab infusions although from what I'm reading the results aren't great for PPMS - anyone here have any experience? I'm determin...

I am arranging a Midland get together Sunday 30th August 11.00 start but relaxed, it is a big hotel so those that want to distance its good, free WiFi so if you need to bring family there is TV and comfortable seating. I will be posting on Facebook and Twitter too so make a note, all MSers welcome, ...

What are people’s views on travel at the moment? I’m due to go to Amsterdam with my friend for a few days in August. Obviously I’ll be vigilant with hand washing and social distancing where possible but I can’t imagine the place will be heaving with folk like it usually is. Am I being too fearless? ...

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

Hi. I'm Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I'm about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I'm gluten free and try to stretch/ exercise daily.

The next Wobble will again be on Zoom (due to the plague) on 16th August at 11am.details will follow

Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...

My name is karen. I was born in England. I will be 43, this year. I had three older siblings. All of them were born three years apart... Five years later I was born. Back in 2002-03, my second oldest sister started having symptoms. It took along time for her diagnosis. By 2020, and my sister can do...

Social distancing is vital to stop covid-19 but it seems that no thought was given to people with reduced or limited mobility. Entrances closer to parking have been closed to limit access so I had to go to the only entrance at the other side of the building. No air cons to not spread the virus are n...