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PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

@liamgrey1882 

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liamgrey1882

I’m a newbie 😊

I usually kee things bottled up but here goes im struggling to let the fact I’ve been diagnosed with ms sink in I feel like guilty for putting my gf and family through it and my temper sometimes gets the better of me and I say stuff I don’t mean I’m on tysabri round 5 coming up soon and diluxatine f...

@Sammy33 

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Sammy33

New to MS

Hi everyone. I'm 33 years old and not so long ago I been diagnosed with RRMS. It took me a while to accept it and figured out what's happening with me. Still very new to it, trying to get as much information as possible. Thanks to everyone for sharing their stories, it's really helps.

@Paul_Tierney 

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Paul_Tierney

Helping with pains

Hi I have Ms for the last 8years , diagnosed at 21, I haven’t luckily had many pains up till now, basically haven’t been able to sleep due to spasm in feet , now given beclomec but don’t find it works , have any followers or volunteers heard of anything that does, nuisance as much as pain uncomforta...

@wjgregg 

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wjgregg

D.V.L.A.

I have just received my new driving licence from the D.V.L.A. After my diagnosis, three years ago, I was issued with a three-year driving licence. Today, out of the blue, I received a one-year licence. There was no explanation for the downgrade. Has this happened to anyone else?

@R-F-J 

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R-F-J

Morning Newbie alert :-)

Morning all, my name is Matt (aka R-F-J) I have recently found this site and hope that it will benefit me going forwards. I was diagnosed last year with PPMS and waiting for vaccines before I start DMTs of Ocrevus later in the year all being well. This has turned my life upside down, as am a keen ...

@ronsarah 

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ronsarah

Just diagnosed 9/4/20

I am the husband of the person who was diagnosed with multiple scerolsis. My butiful wife is Sarah and she is only 41 we recently moved across the country and shortly after that I started noticing that her hair and balance were giving her trouble. It was so bad that police officers have stopped her ...

@zackHussain 

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zackHussain

Hello 😀

Hello All I was diagnosed with MS back in 2003 I’ve had my ups and down I’ve never been on any forums like this before so all new to me after pushing my doctor I’ve managed to have another MRI after 17 years to see how my MS has progressed and awaiting results next week @ 39 now I am worried to be h...

@Henrietta 

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Henrietta

First call with MS nurse - what to ask?

Hello you lovely lot. I was diagnosed with RRMS on July 24 over the phone and have my first phone appointment with my MS nurse next week. I’m not a huge fan of phone appointments - would be so much nicer to meet face to face - but covid means it’s all by phone. Anyway I want to make sure I make the ...

@Ljburns 

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Ljburns

Hi!

Just joined and thought I’d say hi 👋 I was diagnosed with ms in April 2008 , after I had my eldest son. My relapse effected my eyes and my face and mouth where numb, I was given a course of intravenous steroids and that seemed to make a difference, but within 4 weeks I had another relapse that al...