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@dalebrooks 

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dalebrooks

Symptoms before diagnosis how long?

My doctor told me that I have dormant multiple sclerosis meaning that I have the gray areas in my head and most of the symptoms but not the bands in my spine. My question is : is it normal to have symptoms for years before a real diagnosis? My dr told me that dormant ms isn’t a real diagnosis. So as...

@HelenJR 

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HelenJR

Unsolicited advisors

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

@Stephen_Williams 

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Stephen_Williams

Hi to my old friend!

Hi to my old friend! That is SHIFT MS! - Not you, well it could be? I guess a stranger is a friend you just haven't met just yet! I was speaking to my OT via video call at hospital during this crazy and unusual time. She suggested going on SHIFT MS and it is a website I joined several years ago and...

@Constance56 

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Constance56

Just Joined

Hi. I'm Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I'm about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I'm gluten free and try to stretch/ exercise daily.

Newbie here!!

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

@Louise_Christie 

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Louise_Christie

‘You shouldn’t breed’

Anyone else get highly f*cked off when people spread misinformation about the genetic link in MS? Plus the idea that a parent with MS would be less than and is selfish for wanting to have children!? I have enjoyed my life, I am still enjoying my life at 29, 2 years post diagnosis. Had my parents ha...

@melmel1 

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melmel1

Anyone in same boat?

So I was diagnosed with MS in 2018 by a general neurologist after all the tests and on and off symptoms for years, I have 5 lesions on brain 1 on the spine, since then been with a MS specialist who did not want to put me on disease modifying drugs as he wanted to watch me further he believes it's M...

@lilyloo 

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lilyloo

Like minded people needed.....

Hi....my name is Lisa. I'm 50. Until the diagnosis with this life changing disease I was a gym goer....almost every day .... Ran from work....I never really sat down. I have progressive ms. Last year I had a stem cell transplant in the hope my disease would be halted.....it hasn't worked. Its still ...

Another Major Event

I apologize in advance for the long post. I know MS is different from Person to person, My ms consists of numbness in my right hand and neurological pain in my abdomen and fatigue and I experience these symptoms on the daily. When I 1st knew something was wrong was my 1st clinical event that happe...

@Laaa 

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Laaa

Do emotions effect symptoms ?

Hi, first time I have posted but am having tough day. Am 50 but don’t like to think I look it or feel it, in my head at least. Diagnosed rrms in Jan this year (2020). It was actually good to have reason for so many things gone wrong with my health over many years. Am generally not too bad, bladder ...