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@R-F-J 

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R-F-J

Morning Newbie alert :-)

Morning all, my name is Matt (aka R-F-J) I have recently found this site and hope that it will benefit me going forwards. I was diagnosed last year with PPMS and waiting for vaccines before I start DMTs of Ocrevus later in the year all being well. This has turned my life upside down, as am a keen ...

Sweating

Hi thank you for my membership, I’m looking forward to hearing from and about you! I’m looking for advice and also keen to learn if anyone else feels like their internal thermostat is broken. I do not know what triggers it. I sweat 💦 so much that it is making me feel pretty crap. Along with the swe...

@nnahdiliec 

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nnahdiliec

Travelling with Tysabri

Hello! I was just wondering if there’s anyone on here that’s started the treatment Tysabri? I’m currently on Copaxone and the neurologist wants me to move over to Tysabri soon. The reason I’m asking is because I’d planned on going travelling next year and am really hoping this new treatment isn’t go...

@BULLMAN 

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BULLMAN

COVID-19 self test

Open bottle of wine. Smell it. Pour a glass. Taste & smell again. If you can taste and smell then you are ok, but finish bottle just to make sure.

@Underdog 

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Underdog

Cannabis documentary...... aighhhttttt!

Nicked this link from a post over on the M S Society forums......................... https://www.youtube.com/watch?v=mlQ9AFjsVK8 Just watched this documentary and I can't believe I have not seen this before. Alright it was first made approx 4 years before MS came into my life but I think it is rea...

@zackHussain 

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zackHussain

Hello 😀

Hello All I was diagnosed with MS back in 2003 I’ve had my ups and down I’ve never been on any forums like this before so all new to me after pushing my doctor I’ve managed to have another MRI after 17 years to see how my MS has progressed and awaiting results next week @ 39 now I am worried to be h...

@Marg 

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Marg

Introducing myself

Over the years a number of strange things happened physically that could not be explained. I survived them but a couple eyars ago I was told I did have MS and probably had it quite a long time. At my age, I am told there is nothing to be done, no meds so I take everyday as it comes. I paint. I plann...

@Henrietta 

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Henrietta

First call with MS nurse - what to ask?

Hello you lovely lot. I was diagnosed with RRMS on July 24 over the phone and have my first phone appointment with my MS nurse next week. I’m not a huge fan of phone appointments - would be so much nicer to meet face to face - but covid means it’s all by phone. Anyway I want to make sure I make the ...

@JoshD 

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JoshD

Apply for the Access To Work Grant

Does anyone have any experience applying for the Access to Work Grant? If so, I have a few questions I was wondering if anyone if the wiser on; -Do I need to have a registered business and if so for how long? -Whats the minimum I can earn per week? (it says "up to" £160/week but I don't know if the...

@ncm22 

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ncm22

Urine infections ????

Hi everyone, I keep getting stomach pains, pressure down below. Sure it is uti. I keep on getting these. I must admit, I don't drink water really. Are people with ms more acceptable to uti ? Does anyone else get this ? Thanks.