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I have symptoms of MS

I am a 64 yrs. old with no medical insurance. I have gradually had several unexplained physical symptoms of MS since I had a total hip almost two years ago, of course I didn’t immediately suspect MS...I have done a lot of research on every new symptom that would come along these past two years! I g...

@JayJay10 

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JayJay10

I can’t move.

My legs have completely given up on me, they are unbelievably solid, like Stonehenge. I am currently on no medication, trying to see if this is a relapse or something. This has lasted 2-3 weeks already and seems to be gradually getting worse. Does anyone have any ideas on what I could be doing to im...

Sweating

Hi thank you for my membership, I’m looking forward to hearing from and about you! I’m looking for advice and also keen to learn if anyone else feels like their internal thermostat is broken. I do not know what triggers it. I sweat 💦 so much that it is making me feel pretty crap. Along with the swe...

@BULLMAN 

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BULLMAN

COVID-19 self test

Open bottle of wine. Smell it. Pour a glass. Taste & smell again. If you can taste and smell then you are ok, but finish bottle just to make sure.

Sweating

I’ve had RRMS for 4 years and I’ve had 2 rounds of Lemtrada. For years I’ve suffered with extreme sweating and after Lemtrada it’s gotten worse! I literally can’t leave the house as I’ve only got to move and The sweat is pouring off me. I take small electric fans everywhere with me and I have a fa...

MAVENCLAD 2ND WEEK EFFECTS

Hey everyone, was just curious if anyone has taken MAVENCLAD and if they found that the second week (week 5) affected them more or less than the first? In terms of side effects or feeling sick, etc.

@nnahdiliec 

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nnahdiliec

Travelling with Tysabri

Hello! I was just wondering if there’s anyone on here that’s started the treatment Tysabri? I’m currently on Copaxone and the neurologist wants me to move over to Tysabri soon. The reason I’m asking is because I’d planned on going travelling next year and am really hoping this new treatment isn’t go...

@JoshD 

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JoshD

Apply for the Access To Work Grant

Does anyone have any experience applying for the Access to Work Grant? If so, I have a few questions I was wondering if anyone if the wiser on; -Do I need to have a registered business and if so for how long? -Whats the minimum I can earn per week? (it says "up to" £160/week but I don't know if the...

@Marg 

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Marg

Introducing myself

Over the years a number of strange things happened physically that could not be explained. I survived them but a couple eyars ago I was told I did have MS and probably had it quite a long time. At my age, I am told there is nothing to be done, no meds so I take everyday as it comes. I paint. I plann...

@Henrietta 

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Henrietta

First call with MS nurse - what to ask?

Hello you lovely lot. I was diagnosed with RRMS on July 24 over the phone and have my first phone appointment with my MS nurse next week. I’m not a huge fan of phone appointments - would be so much nicer to meet face to face - but covid means it’s all by phone. Anyway I want to make sure I make the ...