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From MS Society With shielding set to be paused in all four nations of the UK in August, we want the UK Government to support people with MS who can’t safely go back to work. We’re campaigning with Age UK, the Trade Union Congress (TUC) and 9 other charities. Together, we’re calling for the furlou...

I’m struggling at the moment. As we went into lockdown, my partner of 11 years decided to tell me he effing hates living with me and dumped me, the same week as I had to have my 19 year old dog put to sleep. He knew from the outset of the relationship that I had ms and it is a degenerative disease...

Hi all, I started on copaxone 4 weeks ago. The first two weeks went really well & I had no side effects. Since then every time I have injected I’ve come out in a hot red swollen rash, which has then turned into a hard lump, like a marble (sometimes bigger) in the injection site. Has anyone e...

There’s quite a bit of literature online for this, and I will be talking to me doctor of course. But as I am on Tecfidera, I was hoping one of you on my team would have a word for me in regard to taking the medication while A) trying to conceive B) while breastfeeding. I know you don’t take the me...

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

I am not trying to be a party pooper here. Why would I? I wrote a bit about them here https://shift.ms/topic/doms-covid-diary-sat-25th-apr This is an excellent piece from a pharmaceutical market analyst. These folk really don't care about you or me, they are in it for the money. End of. Have a re...

Since I've been told by the infamous Dr G (Dr Giavanoni) that it would be too expensive to clinically trial turmeric, I've created this Facebook group to share people's experiences with and document any benefits or side effects that they have after trying half a teaspoon of the stuff after eating

Anyone else get highly f*cked off when people spread misinformation about the genetic link in MS? Plus the idea that a parent with MS would be less than and is selfish for wanting to have children!? I have enjoyed my life, I am still enjoying my life at 29, 2 years post diagnosis. Had my parents ha...

I developed ITP (low platelets) and low white count 3 years after Round 2 of Lemtrada. It has been 7 months now and I am taking Promacta for my low platelet counts. My neutrophils are staying low and currently are 0.1. Has anyone else developed ITP or low white counts that lasted this long?