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I've looked it up and apparently, it's a rare effect of MS only 6%. And doctors prefer to say that is probably caused by another factor. I've just lost hearing in my second ear, the first went 12 years ago in very similar sudden onset. I'm on steroids but I have to say this has really knocked all h...

Hi guys 👋 I'm now SPMS and everything is getting decidedly more difficult. Showering in particular is a major hazard in many ways. My right side is good but my left side is affected by spasticity. I'm right handed and can't do a lot with the left due to weakness and proprioception issues. So...

How much of your immune system do you think is not suppressed? If you know about some research or info I'd love to read. Perhaps 20-40% I'd guess is active seeing as treatment is labeled as causing a low immune system.

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...

Only recently diagnosed (7 months ago) & I’d like opinions on my medication please. My MS nurse prescribed 10mg of Baclofen,one to be taken each night along with 30mg of Duloxetine,one at night for a week building up to two twice a day. I stopped both after a week as was experiencing such a mugg...

Before I start, I want to say, I know it's early days... I was diagnosed in Aug 2019 with RRMS after 18months with a CIS diagnosis. My initial scan showed lesions but they couldn't tell how old or if active. 6 months later a second scan was stable. 6 months later my third scan showed new lesions wh...

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

Finding a way to get the human nervous system to grow back the myelin, the nerve covering that MS attacks and causes the symptoms, be they minor or major, we all experience is the next huge hurdle. - I link to a total science paper here: https://www.cell.com/cell-reports/pdf/S2211-1247(20)30611-2.pd...